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  1. Kitty

    Explain Pain - David Butler and Lorimer Moseley

    I seem to be a really spectacular failure in this department? About 10 days ago I accidentally found a way to relieve the muscle pain I've had for years, and within four or five days I couldn't remember what it was like to have it. The pain came back again this evening. I'd forgotten to top...
  2. Kitty

    The careful assessment tool for managing patients with [MUS] – The experience of Slovenian family medicine trainees.., 2022, Ivetić et al

    Oh, don't worry, it's not a serious discussion of science! Or at least, not a discussion of serious science. I think I'll recommend the Slapdash Assessment Tool to young doctors if I ever visit the area, as it's more fun and you don't have to write essays—you simply employ the time-honoured...
  3. Kitty

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    I read the title as "Tomato scientists are trying to crack one of COVID's biggest mysteries..." About right, then?
  4. Kitty

    Anyone recommend an ultralightweight hoover?

    Apologies, I didn't see this at the time. Most of my house has industrial porcelain tiles (easier for wheelchairs), and I use a Shark steam mop. It's absolutely brilliant. It heats up in less than a minute, there are no chemicals or residues, and the floor dries very quickly. With a traditional...
  5. Kitty

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    I suppose it depends how you set it up, really. If a clinician wants to understand how something is experienced, they listen to patients outlining their symptoms, explaining how they manage them, and describing what they do to avoid provoking them. This is a normal part of diagnosis and...
  6. Kitty

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    The problem historically is that many of them have had a psychosocial basis, which is pointless. When it comes to other types of questionnaire, I guess it's possible to compile meaningful statistics about length of illness, work/education status, age at onset, etc, and to pick up some broad...
  7. Kitty

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    Because questionnaires are really, really cheap to compile and distribute? You don't even need to pay for envelopes and stamps these days. And they're really, really easy for supervisors to manage. Nothing messy or uncontrolled, like having to meet people or test them for something. Of course...
  8. Kitty

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    Because they're pretending to research ME. They're not; they're researching psychosocial issues, which are not specific to ME and frequently not even relevant to it. Obviously, there might be psychosocial issues that are relevant to certain illnesses or groups of illnesses, for instance those...
  9. Kitty

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    My first response would be: only if those psychological factors are what is being studied. Psychological factors aren't directly relevant to the diagnosis or management of physical diseases. If living with a physical disease results in psychological, emotional or social problems, then of...
  10. Kitty

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    In my theories for delayed PEM (which I admit have no basis in actual knowledge), one explanation is that the delay results from processes that take time to ramp up. For instance, I often have 'immune' type symptoms. This doesn't mean the immune system is actually involved, of course; but if it...
  11. Kitty

    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    Merged thread New rule on recording PIP assessments Benefits and Work have released the following news announcement today regarding the rules about recording Personal Independence Payments assessments...
  12. Kitty

    Let's talk wheelchairs and mobility scooters

    Sorry, Jenny, about the leg raise thing: presumably you wouldn't be moving it around with the legs raised (that would be hard indoors unless you've got very big rooms and no tight corners?), so would a lightweight camping table with a cushion on be an option? Sorry if that's a daft suggestion...
  13. Kitty

    Let's talk wheelchairs and mobility scooters

    My main thought is that it's a rear-wheel drive, which are the most difficult to manoeuvre indoors? Mid-wheel and front-wheel are much easier, so they're the usual preference. Do you need to be able to transport it? If so, you are limited with the drive options—but if not, you might get a...
  14. Kitty

    PEM for those who are, or were, mild sufferers, how would you describe it?

    Not true for me; my ME symptoms are less severe now I'm in my 60s, retired, and pacing, than they were when I was 17, working, and not pacing. I've had some nasty relapses but always recovered eventually. My walking ability is poorer, but it's largely due to muscle loss in my lower legs caused...
  15. Kitty

    PEM for those who are, or were, mild sufferers, how would you describe it?

    Mostly severity, I guess, but it also comes down to type of work and level of autonomy. If I'd worked in a job where I had to be on my feet all day, such as nursing, I'd have lasted months at best. Same goes for work demanding a consistently high level of cognitive challenge and flexibility...
  16. Kitty

    PEM for those who are, or were, mild sufferers, how would you describe it?

    And mine—everything he says. I somehow managed to work through 38 years of ME, though there were three or four lengthy periods off sick. There just seemed to be no practical alternative, until additional illnesses made it impossible to continue.
  17. Kitty

    Compression Garments

    I can't answer very comprehensively, @lunarainbows, but I'll have a go. Under the guidelines, my GP can only prescribe if there's evidence of venous incompetence, but each clinical commissioning group may be different. I started out by finding someone on eBay who I think was claiming them on a...
  18. Kitty

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    I'd somehow picked up the impression that this was often the case, but I've since read press articles written by virologists saying that it isn't necessarily so, and it can be rather a dangerous assumption. The articles seemed to be saying that, as long as a virus has enough time to replicate...
  19. Kitty

    Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs

    Yes, I agree (though doctors might use 'unambiguous' reluctantly!), but I'm not sure the second part of the sentence even needs saying. GPs usually have to exclude other things, either because it takes a while to get a full symptom profile from the patient or because clinical guidelines say they...
  20. Kitty

    Perceived working mechanisms of psychosomatic therapy in patients with persistent somatic symptoms in primary care.., 2022, Wortman et al

    Indeed. The working mechanism of Jonathan's hoovers may be to make enough noise to dissuade the cat from sleeping in an armchair, thereby removing the need to vacuum hair off the seat. But only if he has a cat.
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