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So many issues with these Long Covid prevalence papers - I'm going to make a checklist, feel free to copy and paste for later papers, and add things I have forgotten: Size - 1217 patients, not bad except, Selection - :emoji_warning: Selection bias likely. Surveys were completed for only 1217...

We've created a new thread for Brian Hughes webinar in Resources for Health Professionals so that it can be more easily found for advocacy. A number of posts about it have been moved to the new thread. 2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

I've taken to using baking paper with most oven cooking, it works pretty much as well as foil and is cheaper. I rather like soggy microwaved potatoes and sweet potatoes - topped with whatever is around. Maybe the variety makes a difference? I agree food processors are mostly too much effort...

Given, as you say elsewhere, that it's basic immunology, it is really hard to understand how the 8 authors of the paper could have declared 'Autoimmunity is a hallmark of post-Covid syndrome'. Particularly when most of them work either in a Centre for Autoimmune Diseases Research or a Department...

I'm coming from a thread that is even more enthusiastic about the possibility that Long Covid is an autoimmune disease, (i.e. characterised by the presence of autoantibodies), than Dr Scheibenbogen is in the 2021 report above: Autoimmunity is a hallmark of post-COVID syndrome, 2022, Rojas et al...

I'm taking the thread off the topic of this study, I'll head-on over to the discussion thread The possibility of autoimmunity or auto-reactivity in ME/CFS

Just trying to understand the prevalence of autoantibodies in health people - possibly I've done this before, or read something about this already, but forgotten about it. There's this 2016 paper, Silosi et al, The role of autoantibodies in health and disease They seem to be saying, yes...

The figure below will be hard to see, but the detail probably isn't important. The three black dots across the top are 10% markers. IgM are in blue, IgG are in orange. There's a list of autoantibodies, and the percentage of Long Covid patients testing positive to them is shown by the...

Welcome to the forum @katrinapears. It's good to have you here. Here's the MEA weekly research roundup (8-14 2022) by Katrina on this paper, as well as a link to a commentary on a previous paper by DS (11-17 Dec 2021)...

She said she would talk to her supervisor. I sent her an email this morning :), sharing links to the (Australian) ABC radio clip @Simone and @Art Vandelay shared, as well as a couple of other good short clips, a BBC one and SciShow one from theLong Covid in the media and social media 2022 thread.

Posts about the possibility of proline sensitivity have been moved here: Amino acids and energy production

It's possible to answer the survey without living on the Isle on Man - there is nothing saying you can't. There is a question at the end that asks which part of the island you live on - you can leave that blank and still submit a response. If you do that, then, if they want, the organisers can...

Ah, I see what you mean. "Incel" I hadn't heard of it. That is very unfortunate. There's a New Yorker article on the incel phenomenon

Yes, it seems so. This doctor did say that she would ask her supervisor about Long Covid. And, sorry, this is me just venting off-topic, but she looked in my infected ear with an otoscope, that is, she looked in the ear that is clearly leaking pus (with an instrument that goes in the ear...

Not really news, more an anecdote. After having an ear infection for over 2 months, I finally got up courage to go get some antibiotics. I saw a GP intern, she was doing a 6 month placement in the clinic, not her first. She didn't know what ME/CFS was (I had had to fill out a new patient...

Yes. But gastrointestinal complaints such as those labelled IBS are quite commonly reported in ME/CFS and Long Covid. Maybe there is some misdiagnosis - how many people diagnosed with ME/CFS but reporting ongoing gastro issues have actually been screened for IBD or Crohns? I don't know, it...

Great to see heath care providers listening, and seemingly considering combining services for ME/CFS and Long Covid, rather than developing completely separate services. Hopefully the relevant national patient charities will get in touch with the Isle of Man government also @Russell Fleming...

From the IBD Priority Setting Partnerships list: How can pain be most effectively managed in people with IBD? What is the association between IBD and fatigue and how should it be managed? I can see the BPS gravy train rolling on with this call for applications. I don't know if we can think of...

I bought a lactate monitor, one with paper strips to soak up blood from a fingerprick and a monitor that gives a read-out. I tested my blood at rest, at time intervals after short periods of intense exercise, and when I felt good and when I had PEM and felt as though my body was crushed and my...

Yes. But these researchers seemed better than many we have seen, and seem to understand the significance of Long Covid, which is why I suggested people who understand ME/CFS contact them. The researchers themselves call for more study of this and I think they might be open to being assisted to...