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  1. rvallee

    News from The Netherlands

  2. rvallee

    Symptom burden correlates to impairment of diffusion capacity and exercise intolerance in long COVID patients, 2022, Kersten et al

    Those are not the only two options. This seems to believe that the only way for impairment to be chronic is through obviously observable organ damage. I don't know where this obsession comes from but it's seriously impeding progress in medicine. Seems to be in the same line of thinking about...
  3. rvallee

    Unexplained post-acute infection syndromes, 2021, Choutka, Iwasaki, Hornig et al

    I doubt those records would be useful. They are missing too much data and are too inaccurate. Military records, though, like used for the MS study, potentially very useful. Militaries care very much about combat readiness, they don't train troops then not care whether they are functional or...
  4. rvallee

    The effect of medium-term recovery status after COVID-19 illness on cardiopulmonary exercise capacity in a..., 2022, Ladlow et al

    What would rehabilitation do, then? It's basically used like a magical step, where whatever the problem is, "rehabilitation occurs". The reasoning is always deconditioning. Of course it was always BS but even after they find that it's not deconditioning, they still say it should be useful, even...
  5. rvallee

    A Longitudinal Study of COVID-19 Sequelae and Immunity: Baseline Findings, 2022, Sneller et al

    There's something deeply ironic that the day after the NIH publishes this waste of a study, the CDC publishes a warning that 1/5 have significant health problems after getting Covid. It's just so all over the damn place. There's something deeply wrong with medicine here, it makes for an...
  6. rvallee

    An Unexpected Journey: The Lived Experiences of Patients with Long-Term Cognitive Sequelae After Recovering from COVID-19, 2022, Loft et al

    For sure they find inspiration in not letting this happen, know what is awaiting them if it's allowed to happen. This is comically out of touch, although maybe it's just a terrible title and the rest is OK. On the hand, ironically, they find inspiration in that people do recover naturally from...
  7. rvallee

    Long Covid in the media and social media 2022

    US Congress (sub-committee) hearing on Long Covid happening today:
  8. rvallee

    Rehabilitation Strategies for Cognitive and Neuropsychiatric Manifestations of COVID-19, 2022, Rolin et al

    Uh, no, they have not. The frequency at which aspirational goals are presented as if they were happening is truly bizarre. The efforts remain pitiful and many countries have made denial the official policy. There is huge demand, for sure, but nothing substantial is being done to meet it, mostly...
  9. rvallee

    Long Covid in the media and social media 2022

    The LC clinics are literally promoting quackery en masse. The patients understand this and it is bringing discredit to the entire profession. It's beyond hypocritical for medical and public health institutions to warn long haulers about quackery when most of the clinics are built on quackery and...
  10. rvallee

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    Uh, I could read it last night. In full. They probably published it open access by mistake and locked it after. It's filled with basic errors, misinterpretation, circular sophistry throughout. He actually claims that GET is good because it's used for other diseases, e.g. post-Covid-19. Yes, he...
  11. rvallee

    Chronic Fatigue Syndrome and Occupational Status: A Retrospective Longitudinal Study, 2021, Chalder et al

    Of course. Academia is broken. This is 99% politics and "he says they say we disagree". There is no arbiter, everything is rhetoric and influence. This is a completely broken way of doing things, one that places zero value on outcomes and that this is about real people in real life.
  12. rvallee

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    It'd be really great whenever media talk about something "giving hope" to people, that it would actually check, rather than simply publish a quote from some bureaucrat who is simply saying this because it sounds nice. Although, to be fair, that's way more work than just stenography. Crumbs...
  13. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    100%. Frankly, this pretty much makes the strongest case for why the SMC needs to be closed down, having completely failed its original mission. If the CEO of an organization that is in the promotion of scientific truth is so heavily engaged on the wrong side of it, that organization clearly...
  14. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    The only good outcome of this is that LC blows this controversy open for what it really is and ends up destroying the SMC for their misbehavior, in general and Fox and Wessely in particular. Hard to look more foolish than this as an organization pretending to uphold science, and doing exactly...
  15. rvallee

    Excessive Postural Tachycardia and [POTS] in ...: Associations With Distress, Impairment, Health Behaviors, and Medication Recommendations, 2022,Klaas

    Those are all adjustments, effects to the cause. This makes as much sense as observing that poor people have no savings and that therefore having no savings is what makes people poor, so poor people should just be encouraged to save money and they won't be poor anymore. Or in the same idea...
  16. rvallee

    Long Covid in the media and social media 2022

    Like we're still at day 1. Nothing learned at all that we didn't know for a long time. Hell, like we're still in the 1980's. The only difference it that it all isn't almost universally dismissed as silly nonsense, just mostly misrepresented and with bits of BPS pseudoscience here and there...
  17. rvallee

    EDS, hypermobility, and the link, if any, to ME/CFS

    No one knows or cares about those losers, this isn't how patients are approaching this. It's literally just people suffering from odd symptoms that physicians can't explain and trying to make sense of. This is medicine's job and it's not happening so a void of expertise, made through a legal...
  18. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    It's a poem by a German pastor published in 1946, about how the Nazi regime disappeared one group of marginalized people after another, until all that was left were good Germanic/Aryan Nazis. First they came for the socialists, and I did not speak out— Because I was not a socialist. Then...
  19. rvallee

    Excessive Postural Tachycardia and [POTS] in ...: Associations With Distress, Impairment, Health Behaviors, and Medication Recommendations, 2022,Klaas

    I think they noticed pwPOTS drink more water but don't understand that they do to manage the symptoms. Clinical psychology can only do associations, so they don't know how to interpret information that has a reason for being, since they probably disagree with that reason (thus making themselves...
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