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'Helpfully' in the UK not only have they removed the ability of people who think they may have covid to get tested for free, and any accommodations that were deemed not just sensible, reasonable, and essential, to allow people to isolate should they have covid, but they also went a step further...

Yes, but rare now that I do less, am housebound. Walking, uphill, stairs sometimes - oddly doing squats with a fair amount of weight never caused it, so it would seem to be a sustained repetition thing rather than purely a loading thing. I don't do hills these days (at least for now), barely...

6 minute walk test a problem? No problem, do an hour.

Is a 5.2% difference, on the chalder fatigue scale, really significant for pwME, given how small it is, and the almost total insensitivity/misattribution of the chalder fatigue scale when it comes to ME?

For me it's an overload symptom, only occurs in crowded, and importantly, very echoey places - like bus stations, shopping centers/malls. Other things, like being unable to move (cognitive issue, things/people move faster than I can predict so unable to 'decide' where to step next as the...

:banghead::grumpy::banghead:

I haven't been offered a fourth, despite being a priority for the third, which I seem to remember was late October.

Possibly that could be coz of how medical types are trained to respond to such things?

It just opened for me.

Typical tactic, used by bullies, is to accuse others who complain about their behaviour, of bullying. We've been getting it for years, by virtually all opponents of ME as a thing, been called extremists, vexatious, militant, aggressive, accused of death threats, etc. Had 'our' reputation...

Can a patient 'cyber bully' an organisation? To me it reads more like 'go away or I'll let the dogs out', or 'shut up'. Didn't even bother to go through 'vexatious' but went straight to 'I don't like what you're saying so you're a bully'. Really quite 'bad'.

What's OOQ10? (Google did not enlighten me) Did you mean CoQ10?

Comments are not increasing my desire to watch it, something I very rarely do with video anyway.

I am not a GP, doctor, medical anything. 5HT is serotonin. I am unaware of a specific/useful serotonin test, there probably is one (although AFAIK it's generally produced in fairly local/specific areas, so levels in the blood/saliva/urine 'may' be irrelevant to those in tissues that need it)...

So...many people 'like' being successful, no matter the route to or basis of their success, and being rewarded by society for it? How surprising.

I don't think so, not in the NHS (which I realize doesn't routinely operate in Canada ;)). I've had a nurse shake a vial of fresh blood (mine) in front of me and ask me if it looked right, it was thick, dark, not red, viscous, and had taken her minues to obtain, and looked like tar. I am...

I can't help but wonder, in a disorganised way, if replacing every occurence of the word 'yoga', with the word 'haggis' would in any way bar such 'research' from being published, or cause it to have less meaningful results? Obviously I couldn't organise such a thing, but...LOL ETA -...

I don't drink (scoring 1, 0, and 1, so 2 - but it could have been 1,1,1 if I was 'socialising', which mostly doesn't happen as I live alone and don't like people much, but if forced to 'socialise' about the only thing that makes it even slightly tolerable, is alcohol). So, I, who drinks maybe...

So, obviously, the official treatment for long covid will now be 'stop drinking' as 'research' has shown that people who consume 'problematic' levels of alcohol have long covid. Ergo - alcohol causes long covid. (anyone who says they don't consume alcohol is obvious lying, or delusional) ETA...

20 or so years ago my then GP told me, when she asserted I was suffering from depression but I said I wasn't depressed, that in her opinion I was, and that I was not qualified to know, if I was depressed, or not. So depression without being depressed has been a concept, in the NHS at least, for...