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Solve have announced their latest batch of Ramsay Grant researchers. We're excited to share the newest class of Ramsay Researchers! Since its launch, our Ramsay Research Grant Program has been successful in attracting new scientists to the fields of ME/CFS and Long Covid. Ramsay researchers...

Abstract Importance Characterizing the effect of vaccination on long COVID allows for better healthcare recommendations. Objective To determine if, and to what degree, vaccination prior to COVID-19 is associated with eventual long COVID onset, among those a documented COVID-19 infection...

Introduction On the last day of the year 2019 a novel Betacoronavirus (2019-nCov), now known as severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), and causing the highly transmissible and lethal pneumonia COVID-19 was first reported in Wuhan, Hubei Province in Central China (Huang et...

Abstract Suicide is an urgent concern for people with chronic illnesses, particularly for those with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Prior work has examined suicide risk in this illness, but few studies have examined specific risk factors. This study uses binary...

As far as I recall we don't have anything that has already been printed but we do have a page of shareable resources on the website, https://www.decodeme.org.uk/ways-to-share/, which includes this leaflet (see attached file) which could be printed at home (obviously if you have a printer).

Those participants who were asked to donate a saliva sample and who have returned them are notified when the processing centre has received them. A couple of tweets from participants about those messages "What a great and important email from @DecodeMEstudy to wake up to so good to know if no...

ABSTRACT Chronic lung disease is often accompanied by disabling extrapulmonary symptoms, notably skeletal muscle dysfunction and atrophy. Moreover, the severity of respiratory symptoms correlates with decreased muscle mass and in turn lowered physical activity and survival rates. Previous...

Abstract Pericytes (PCs), as a central component of the neurovascular unit, contribute to the regenerative potential of the central nervous system (CNS) and peripheral nervous system (PNS) by virtue of their role in blood flow regulation, angiogenesis, maintenance of the BBB, neurogenesis, and...

Abstract Background Little is known about the illness experience of patients’ long-term emotional and physical recovery from severe COVID-19 infection. This study aimed to expand upon the recovery process of COVID-19 survivors up to 6 months after hospital discharge. Methods Qualitative...

What I would like to see is DwME approaching the British Medical Association, the trade union and professional body for doctors in the UK, to implement this? Policy positions are all well and good but what are they doing, as the "the global professional association for medical practitioners and...

Video: Juan Corlett, Engagement Lead for Community Support and Integrated Care for the ME Association would like to introduce himself to the ME/CFS community. Juan says: "I'm extremely proud to have joined this fantastic UK charity for a fantastic cause and something I feel extremely passionate...

Video: Prof Karl Morten (2022) Mitochondrial dysfunction: Chronic Fatigue Syndrome and long COVID

From https://www.nice.org.uk/guidance/ng206/documents/evidence-review-7 and in your order Page 54, PACE, "Serious population indirectness – Oxford criteria used; PEM is not a compulsory feature." Page 24, Janse et al, "Serious population indirectness – 1994 CDC criteria used; PEM is not a...

Recording of Sheffield ME and Fibromyalgia Group Presentation and Q&A with DecodeME principal investigator Prof Chris Ponting

Abstract Objectives Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Their pathogenesis remains unclear, clinicians often find them difficult to treat, and lack of agreement between healthcare providers and patients is common. This study...

Study now published, merged thread Use of Cardiopulmonary Exercise Testing to Evaluate Long COVID-19 Symptoms in Adults A Systematic Review and Meta-analysis Key Points Question Is exercise capacity reduced more than 3 months after SARS-CoV-2 infection among those with long COVID-19 (LC)...

Abstract This exploratory prospective study based on 279 individuals showed that plasma levels of neutrophil elastase, myeloperoxidase and circulating DNA of nuclear and mitochondrial origins in non-severe (NS), severe (S) and post-acute phase (PAP) COVID-19 patients were statistically...

The MRC funds the Dementias Platform, https://www.dementiasplatform.uk/ and are listed as one of the founding partners for the Accord Collaboration, "The national ACORD collaboration was formed in 2021 to encourage and support the development, running and reporting of Multi-arm, Multi-stage...

"A preliminary report for the German guideline on #MECFS recommends graded exercise, despite the fact that @NICEComms found these therapies to be ineffective and that thousands of patients have reported being harmed. A one month consultation period is now open." "The report can be read here (in...

Thanks. Interesting to note that this is the existing one, dating back to 2003, updated. It looks good but manages not to talk about PEM at all. What I'm hoping to find though is evidence for the funders being more proactive than this in other diseases. Despite the claim, "Building our...