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  1. shak8

    An Integrative Neuropsychological Approach to Chronic Pain, Emotions and Clinical Symptoms, 2022, Montoro and Galvez-Sánchez

    Back in the 1990s there was a flurry of biomedical research into FM. Dr. Robert Bennett's group in Univ. of Oregon, for example, looked at cerebral spinal fluid and found levels of Substance P elevated in FM. He discovered that growth hormone levels low, related to sleep problems. All of this...
  2. shak8

    Lifestyle Redesign® Intervention for Psychological Well-Being and Function in People With Fibromyalgia:A Retrospective Cohort Study 2022 Shomer & Roll

    How would OT improve on the usual chronic pain classes I wonder. Maybe they would emphasis pacing, using joint-sparing devices. Who knows. Or it's another entrepreneurial venture (hence the trademark) destined to cost the US more than it already spends on health care. I'm trying to stay...
  3. shak8

    An Integrative Neuropsychological Approach to Chronic Pain, Emotions and Clinical Symptoms, 2022, Montoro and Galvez-Sánchez

    Yes, Carmen Galvez-Sanchez of Jaen and her group focus on chronic pain. Their mixing up of cause and effect is most unhelpful. Apparently, they have no idea how severe having FM chronic pain can be and how the experience of pain itself can make one depressed in the moment, usurp any precious...
  4. shak8

    Looking at fibromyalgia differently – An observational study of the meaning and consequences of fibromyalgia as a dimensional disorder 2022 Wolfe et a

    The 2016 FM diagnostic instrument (https://www.fmauk.org/files/acr2016FibroCriteria.pdf) is simple enough, and is referenced in the article by Woolfe, F; et al. This is the main value of the article for me, seeing this instrument, a supposed improvement over the 2010 ACR (American College of...
  5. shak8

    I'm a Neurologist, Hear Me Roar — If I wasn't believed when seeking care, what chance do non-physicians have?

    Not doing an MRI on a colleague, can you believe it. Beyond the pale. i think that rational thought is missing most of the time in our species, and doctors are not 'special people' over-endowed with superior brains.
  6. shak8

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    Forest bathing comes from the Japanese. Since they have a tradition of nude bathing with both sexes and all ages especially in hot-springs, or bath houses en ville, I get the "bathing" experiential part. Immersing yourself in (water) or an environment with all your senses and a social equalizer...
  7. shak8

    Fibromyalgia and nonfibromyalgia chronic pain: Differences in psychological characteristics and treatment outcomes, 2022, Salaberria et al

    I'm trying to process my doctor visit last week out of my system. This doctor prides himself on all that he thinks he knows about FM. He verbally bombarded me with his recitation from memory: the FM treatments: FDA meds/tai chi/yoga/mindlessness...I came out of there feeling that I was less of...
  8. shak8

    Fibromyalgia and nonfibromyalgia chronic pain: Differences in psychological characteristics and treatment outcomes, 2022, Salaberria et al

    From my reading about FM (which seems more now a diagnosis separate from the term 'chronic pain' in lists in medical departments) but whatever: Some of the literature that emphasizes anxiety and depression in FM---this 'fact' could be attributed to (from what I've read) the degree of brain...
  9. shak8

    Affective scaffolding and chronic illness: 2022 Eleanor Alexandra Byrne

    "...Fibromyalgia, whose aetiology is ultimately unknown..." Ultimately known. Really? As yet unknown.
  10. shak8

    Distinctive alterations in the functional anatomy of the cerebral cortex in pain-sensitized osteoarthritis and fibromyalgia patients 2022 Pujol et al

    Not that I'm qualified to assess this study, but I find it useful (me having FM and having a distinct lack of what the researchers in this MRI department in Barcelona call a 'cortical map of the body'). I don't chafe at the use of the word 'functional' in looking at brain networks in MRI...
  11. shak8

    Feasibility and Acceptability of a Home-Based Sensory Perception Training Game for Patients with Fibromyalgia: A Pilot Study 2022 Demoulin et al

    My FM guess is that the 'somato-sensory' training is the usual : focus on other parts of body not experiencing pain. Or really feel the pain in as minute a way as possible, experience it fully. Either way, you still have the pain. But alas, don't have access to more than abstract.
  12. shak8

    Placebo effect discussion thread

    Which electrical therapy--I'd like the author to come out with it.
  13. shak8

    Feasibility of therapeutic music listening in fibromyalgia: a randomised controlled pilot study 2022 Raglio et al

    Their music as "complementary treatment." Complementary = alternative = integrative = quackery (unless definitively proven otherwise). My n=1 as a PwFM is this: music is no longer pleasurable, except for classical guitar. It is simply too much sensory input. Also, in the pilot feasibility...
  14. shak8

    Longitudinal association of sedentary time and physical activity with pain and quality of life in fibromyalgia 2022 Gavilán-Carrrera et al

    I haven't, couldn't access whole report. However the number of subjects measured at five years (185) were greater than the ones measured at two years (175). I assume that the folks measured at two years were then measured at five years, for comparison's sake. But then, where did the extra 10...
  15. shak8

    Effect of herbal cake-separated moxibustion on behavioral stress reactions and blood lactic acid level and muscular AMPK/PGC-1α signaling.. 2022 Xu

    Even Mao didn't use Chinese traditional medicine because, he said, it didn't work.
  16. shak8

    Holistic or harmful? Examining socio-structural factors in biopsychosocial model of chronic illness,‘MUS’& disability, 2022, Hunt

    Neoliberalism is an economics concept and is: shrinking government, including its responsibility for taking care of people in need. Espouses privatization of everything. Associated with the Libertarian Party and conservatism in general. https://en.wikipedia.org/wiki/Neoliberalism
  17. shak8

    Covid-19 vaccination experiences

    Got both the flu vaccine and the Pfizer hybrid yesterday. Transient feeling feverish, aching on top of FM ache, sore arm muscles. Wired. Better this morning. The woman giving me the shots here in California was from Hertfordshire/Oxford and she consciously tones down her accent, running her...
  18. shak8

    Covid-19 vaccines and vaccinations

    I apologize for that. I should have warned. I forget that others are affected bigtime (because I'm not, though I hated the visuals).
  19. shak8

    Measuring dietary intake

    I was or still am a participant in the Harvard Nurses Health Study and we had a dietary intake questionnaire for several years (I questioned its accuracy by recall of the participant to the researchers and they assured me it was "valid.") They might give you some info on setting yours up...
  20. shak8

    Covid-19 vaccines and vaccinations

    https://www.science.org/content/article/how-sars-cov-2-battles-our-immune-system If you are interested in the virus, this is a pretty spectacular article in Science (the magazine).
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