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  1. Kalliope

    Nobel prize winner Katalin Karikó is now focusing on a disease without a cure

    Nature had a related article yesterday: mRNA COVID vaccines saved lives and won a Nobel - what1s next for the technology? quote: Where the technology could really make a difference is with pathogens that drug firms haven’t been able to crack. One is cytomegalovirus (CMV), a virus that has...
  2. Kalliope

    Nobel prize winner Katalin Karikó is now focusing on a disease without a cure

    How exciting. I took an online class on the mRNA vaccine from Penn University a while ago and regarding the future of this technology, they wondered if a combination of mRNA vaccines and CRISPR could become a cure for cystic fibrosis one day.
  3. Kalliope

    BPS attempts at psychologizing Long Covid

    Interview in Swedish media with the Dutch researcher Hans Snoop who says CBT and GET is a treatment for Long Covid. The Swedish researcher Elin Lindsäter is planning a study on the same treatment in 500 severely fatigued patients. Even if not everyone is helped by it, it's important to try it...
  4. Kalliope

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    Yes, even harder words could have been used, but it was nice to have a debate where all participants actually are trying to find some solutions or at least better the situation, instead of someone from the psychosomatic side making everything about their beliefs. And all agreed that it's...
  5. Kalliope

    Nature communications: Predictors of the post-COVID condition following mild SARS-CoV-2 infection, 2023, B-A. Reme et al

    The Norwegian Institute for public health has written about this study under the title (translated): Increased risk of sequelae after Covid-19 among those with psychological- or respiratory health issues in the years before the pandemic And today in a medical newspaper the headline on the front...
  6. Kalliope

    Nature communications: Predictors of the post-COVID condition following mild SARS-CoV-2 infection, 2023, B-A. Reme et al

    Abstract Whereas the nature of the post-COVID condition following mild acute COVID-19 is increasingly well described in the literature, knowledge of its risk factors, and whether it can be predicted, remains limited. This study, conducted in Norway, uses individual-level register data from...
  7. Kalliope

    BMJ: Impact of Long Covid on the school experiences of children and young people: a qualitative study, 2023, MacLean et al

    The study makes a couple of comparisons to ME/CFS. News Medical has written an article about the study: Research shines light on the profound effect of Long Covid on the lives of children and young people quote: New research from the Nuffield Department of Primary Care Health Sciences, the...
  8. Kalliope

    BMJ: Impact of Long Covid on the school experiences of children and young people: a qualitative study, 2023, MacLean et al

    Abstract Objectives To explore the impact of Long Covid (LC) on the school experiences of children and young people (CYP). Design Qualitative study using narrative interviews. Participants 22 CYP (aged 10–18 years, 15 female) with LC and 15 parents/caregivers (13 female) of CYP (aged 5–18...
  9. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    ME Association Statement by Dr Charles Shepherd and Russel Fleming Oslo Chronic Fatigue Consortium 'New Hope' is "More Unhelpful Nonsense"! quote: While we focus on trying to bring positive change on behalf of people who have been neglected for far too long, others are choosing to go against...
  10. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Moved post Article from a research news site with interviews with Professor Silje Reme, Professor Tronstad and the Norwegian ME Association. Some quotes: ME patients are often advised to be careful about exerting themselves, so that they do not develop symptoms afterwards. - This does not...
  11. Kalliope

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    Yesterday's seminar was very interesting and thorough. The researchers presented their research project and findings. Then there were two debates with two politicians, a doctor from the Norwegian Labour and Welfare Administration, the general secretary of The Norwegian Federation of...
  12. Kalliope

    BPS attempts at psychologizing Long Covid

    Thank you, @SNT Gatchaman This was a new acquaintance for me. He didn't say straight out this time that ME is psychosomatic, but that both Long Covid and ME are "very real". But I guess "very real" is just another dog whistle for psychosomatic.
  13. Kalliope

    BPS attempts at psychologizing Long Covid

    A VERY frustrating podcast about Long Covid and ME. The solution is GET, CBT and the PACE trial was just great. Bah! The doctor talking has been on a recent Long Covid conference in Melbourne and I wonder if this is where he might have learned these things...
  14. Kalliope

    Long Covid in the media and social media 2023

    Yes I agree it will be difficult to get enough participants. Particularly as you have to be located in Bergen to join (I tried to join from another city). But perhaps if they expand it to a multicenter study they can get more people. Yes, our health authorities seem to be successful with the...
  15. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    At least there are more researchers in the post infectious field now, and more speaking up against this gang: Long Covid researcher Resia Pretorius on Twitter: What an ignorant and disrespectful statement: “‘May not indicate bodily disease”. ALL disease starts with definite pathophysiology...
  16. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    I assume also Garner is included as a representative of patients. But other than Vogt being a member of Recovery Norge, then no, you are right, no current ME/CFS sufferers or patient organisations included.
  17. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Vogt suffered from tinnitus, and I think he thinks that's relevant because he regards both tinnitus and ME as under the same umbrella. LP coach Live Landmark was diagnosed with ME but says in her talk about LP that the method gave her a choice of either having an incurable disease or a stress...
  18. Kalliope

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    This consists of names including Asprusten, Brurberg, Chalder, Fink, Flottorp, Fors, Garner, Knoop, Landmark, Reme, Sharpe, Vogt, Wyller and more
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