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  1. Hutan

    Checklist to assess Trustworthiness in RAndomised Controlled Trials (TRACT checklist): concept proposal and pilot, 2023, Mol et al

    A summary of the red flags suggesting further enquiry - the actual items are a bit more defined than I have summarised them as, making it easier to say 'yes' or 'no'. Governance No registration of the trial before the trial starts Discrepancy between planned and actual sample size Issues with...
  2. Hutan

    Checklist to assess Trustworthiness in RAndomised Controlled Trials (TRACT checklist): concept proposal and pilot, 2023, Mol et al

    This appears to be the main link with Cochrane Also one of the authors is a member of a Cochrane group.
  3. Hutan

    Checklist to assess Trustworthiness in RAndomised Controlled Trials (TRACT checklist): concept proposal and pilot, 2023, Mol et al

    Abstract Objectives: To propose a checklist that can be used to assess trustworthiness of randomized controlled trials (RCTs). Design: A screening tool was developed using the four-stage approach proposed by Moher et al. This included defining the scope, reviewing the evidence base, suggesting...
  4. Hutan

    Publication integrity: what is it, why does it matter, how it is safeguarded and how could we do better?, 2024, Bolland et al.

    More from this team here: Who Cares About Publication Integrity?, 2022, Grey, Avenell & Bolland
  5. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    Thanks @Deanne NZ. Great, SNT. Could also provide material about the Cochrane Exercise Review, especially given at least a couple of Cochrane Officers also work at Auckland University
  6. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It's useful to see what authorities think FND is. Mayo clinic https://www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197 NINDS at NIH https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder The entry on wikipedia is really...
  7. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I recall that you have suggested that there is no such thing as hEDS, which did cause some people for whom hEDS is part of their identity some consternation. However, you were not suggesting that those people's symptoms were not real. Those posts were allowed here, despite some vigorous...
  8. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    Ha. If so, I hope he saw my comment in the chat that Arroll is a major contributor to the RNZCGP's promotion of faith healing equivalents. Probably he'd take it as a compliment. Yes, Warren is so helpful in so many ways, but I think he is still getting some things significantly wrong. There...
  9. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    I caught the end of a webinar on Long Covid with Michael Baker, Warren Tate, Paula Lorgelly and Jenene Crossan I must have got the time wrong. https://helenclark.foundation/event/webinar-long-covid/ A copy of the webinar will be up on the website tomorrow
  10. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    Another interview on Nine to Noon on Radio NZ this morning: Are insurers wrongly declining ME/CFS claims? https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018932623/are-insurers-wrongly-declining-me-cfs-claims
  11. Hutan

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I don't think that is the case, that I have not understood that things are complicated. I think a person who currently feels happy with their FND diagnosis can still suffer harm from it. No, I'm not missing that point at all. I am just noting that people feeling comforted by their FND...
  12. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    A main point of that Barnett, Tyson 2020 paper is to encourage neurologists to clearly diagnose FND and to clearly tell the patient, so that patients don't turn up to appointments with allied health professionals for treatment unaware that that is what the neurologist's conclusion was. The...
  13. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Well, naturally, many of us are concerned that people who meet ME/CFS criteria are being diagnosed with FND. Because we know the treatments that they are given with that diagnosis won't help and may harm in a range of ways. So, we are concerned about misdiagnosis and the promotion of treatments...
  14. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    The 2020 paper that Tyson coauthored definitely talks about treatment, with a clear expectation of therapeutic progress. It also gives the impression that the illness is not poorly understood, and urges clinicians to confidently convey that it is not poorly understood. The paper is linked here:
  15. Hutan

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    'The Vicious Cycle' paper clearly shows that Professor Sarah Tyson held full BPS views in 2020 and probably still does. She has seemed to not understand the importance of objective outcomes in determining benefits from rehabilitation efforts. She is training young people in these ideas, so, if...
  16. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I don't refuse to believe in the possibility of a category of illness called FND. I do think that careful (and probably often expensive) diagnostic effort would separate more people from that category now, and even more in the future as we learn more. I have not yet seen any credible...
  17. Hutan

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Perhaps that person should read the The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett et al review, to find out what many healthcare professionals will be thinking when the patient mentions their diagnosis? If they are aware of...
  18. Hutan

    Review The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett, Tyson et al

    Sure, but this paper suggests that most healthcare professionals don't see it like that. The term is so debased, there's so much prejudice, that it probably can't fairly be used if someone means it simply in a 'I can't see any structural change that is causing the dysfunction' sense.
  19. Hutan

    Review The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett, Tyson et al

    My point was that this is a paper reviewing other papers that interviewed health care professionals. At no point were patients with FND diagnoses directly asked what they want. But, fair enough, the authors do cite some papers with titles that suggest that people with FND were asked about their...
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