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It's also sad to watch so many people who might think a lot of themselves being so incapable of growth and change. I suspect there is a power / market / competition structure issue going on here. One thing I've noticed is that there are a few 'old names' who have made businesses for themselves...

Here is the other silly thing. If we suggest there were just two problem sectors that are contributing to this. You have the psychiatrists/liaison psychiatry (which I'm starting to see from social media is a real problem area/source) and those who are unable to answer back to them or referring...

Very good point to bring up. I often think that having chucked us into the terminology of the mental health/rehab realm where 'recovery' is used and means a very dodgy version of what it actually means is now an issue that needs to be fixed. The terminology matters as it drives how things are...

It's not just PEM but I think what gets failed to be emphasised is the cumulative nature. And how a good way to create a deterioration is to just uplift your output, probably exactly by doing all the tricks on 'energy levels' and maxxing them out, and saying yes instead of no and the like -...

in fact on that last para - where people think claiming ‘they had a belief [that instead of being ill and needing treatment as per guidelines these people had false beliefs and needed to have their freedom removed and physical needs ignored]’ is valid. well to me isn’t THAT the line where said...

It is very sad because if you think for example about the common connection/source of ME/CFS being EBV/glandular fever. It feels one that medicine could easily have been properly working on over the last however many decades? I think some people mention now that there are actually antivirals...

I think the issue is the gap in expertise. People were foolish to think that allowing the old staff - who had the opposite of expertise and needed de-programming of their false beliefs before not just learning knowledge but critical thinking and science etc - in place. And letting them...

the therapists who won't learn about the condition dead-headedly insisting they get to be the one planning someone's life intimately because they know better. It is just the madness of the mindset.

Well no it sounds like just as they destroyed psychology and mental health proper from moving forward to move it into transdiagnostics they can throw any old thing at to ‘calm and control the people’ so they are wanting to move into medicine not doing diagnostics this is all about an allergy to...

According to what they would claim is involved with psychosomatic (expectations) makes no logical sense. those without a test will be those who anticipated when they got ill that there would be no need for a test because all will as per a cold be fine after a few days of sniffles and those who...

And it appears they’ve persuaded RCP that’s ok people are happy to harm us as long as the situation allows them to not have to face up to what they did or take responsibility for it

:laugh::laugh: the sad thing is... what a life she has, now if only they'd step back and help us to be able to get some medical care and research breakthroughs ie actual treatment then I think there are a load of us who'd just go off and do any of these without any of the rest. The fact we...

it seems they just are a bunch who cant think outside the behavioural model. Very old-school/fashioned underneath it all. they can come up with different words in their imagination why it might be that their behaviour just needs fixing with behavioural training, vary how they sell the carrot...

To be fair they let some of their more obedient patients turn up to do a poem or a song to the audience..

of course she is pro-GET Looks like she would need to change the name of her company from 'Vitality' otherwise her bio on: Our team — Vitality 360 "Jessica is the Founder Director of Vitality360. Her vision was to create a range of personalised therapeutic services that provide extraordinary...

OK I had to double-check but this seems to be potentially Jess Sands who is running these sessions: Jessica Bavinton Our team — Vitality 360 you'll note it is Jess Sands (Bavinton), Founder Director of Vitality 360 WHich is the same name as the physio from the ME Association article...

and for the 'sleep' presentation: Ms Kirsty Vant (gold.ac.uk) "Biography Kirsty Vant is a public health nurse and CBT-I therapist, she is currently completing a part-time psychology MRES. Kirsty is interested in the relationship between health, well-being and sleep, she is currently...

Invited in by a bunch of people metaphorically chasing us with a stick as we try to escape saying to outsiders 'the bastards don’t know what’s good for them honest, we do this because we care, why do they keep saying what we do harms and doesn’t work the horrible, mad, scroats'. At least they’ve...

Here’s the other thing I don’t think BACME members do want to save us or help us - it's never been about the people or patients (just pawns). I don’t think that their programme even reads like that anymore I do think they are deluded by their own sales spiels and their job titles saying what...

I think there was another item/session of another conference where they used ‘ly’ at the end of Nice I couldn’t be doing with it at the time but of course it’s two fingers up at Nice they mean ‘sort of adjacent and nodding to’ at best. To me it smells / sells like people with a supply-led/...