Search results

That would only be true under CCC if they were all adults (for children it's 3 months IIRC). How about: - They have no other conditions that could adequately explain their entire cluster of symptoms. - They all have at least one cognitive or sensory-perceptual symptom. I was initially going to...

Enteral feeding is reasonably safe but still not without risks. If I remember correctly... change of bowel habit from the feeds is common- NGs/NJs: hoarseness & discomfort are fairly common; there's an aspiration risk: if the tube does become displaced and feed spills into the respiratory tract...

May be the "clinical management of COVID-19 - living guideline", p115 of the PDF: "Interventions for rehabilitation based on fixed incremental increases in the time spent being physically active or graded exercise, should not be offered to people experiencing PESE (150)": Link...

There's some good stuff in this, and I'm always gratified to see sensory issues being addressed with the seriousness they deserve. Am I the only one to think it jumps around a little too much between the general needs of the majority of pwME and the needs of a relatively small handful of very...

Thanks. I've not yet listened to all of it but have listened to the first 5 minutes. I was struck by her comment that "needless to say that if you have POTS and hypermobile EDS you've probably got 3 or 4 of these" [list of syndromes slide @ 3:40]. Even in patients with generalised hypermobility...

I don't suppose she's published any case reports? I'd certainly like to see examples of the imaging findings and how she considers that those findings account for the cluster of symptoms that this group of patients commonly report. As students of medical history may recall, "gastroptosis" was a...

Having listened to it fully now I think the BBC journalist did a decent enough job. I'm sure it can be difficult for journalists to discern truth from honest dispute from lies in a case like this, and that difficulty is multiplied when there are people with excellent credentials - at least on...

Also "ethical challenged", "The trail", "anecdotat accounts" and "who got much wore".

It's not just LP, either. Just today another form of LP-esque charlatanry ("somatic experiencing") poked its head up with a puff piece in the Telegraph (archived link so as not to give them more traffic)...

Some other quotes from this that are simply completely wrong: There was an opportunity here to change people's minds and shift opinion from a psychogenic model to well, no model but that of compassionate care and pragmatic management. Unfortunately, a lot of people in the NHS who might be...

I haven't yet listened to the whole thing - I used my day's quota of energy reading the MEA post - but my concern is that for such a mendacious huckster as Parker, any publicity is good publicity. I had hoped someone would dig into his background as a tarot-card-reading faith healer: there's...

You're right, I should've been more careful in how I worded that (especially as someone who has personally experienced the gastroparesis-like symptoms and the associated weight loss and feeding difficulties). What I meant to imply was that it's not a disease process that usually poses a high...

Just skimmed through this. There's a lot of good content in this, although I do have a few concerns. I'm not sure why they've described it as "potentially serious". It does not routinely* lead to death or progressive deterioration, but in terms of the impact upon one's life it is very serious...

You could measure all kinds of variables. Backspace use, yes, and inter-word as well as inter-keystroke timings (the time it takes to find a suitable word). Spelling & grammar error rates relative to a baseline. Mouse movement patterns. As for privacy - as long as you don't store the text on...

You could track how the user's speed, error rate etc changes over the course of working on the same task (document/web form/etc) - does it worsen over time, and by how much? Are they fatiguing quickly, or slowly? You could also try to do this a bit more intelligently by tracking the user's...

Here's another possibility: typing patterns. I'd bet that if I typed a paragraph or two and inter-keystroke timing was measured you'd get a correlation with how I was feeling on that particular day. (If you wanted to observe usual activity, rather than keep asking the user to type a sample...

Speech. Word-finding difficulties, errors or slowness in speech, more "er"s and pauses, and perhaps tangentiality or a lower level of coherency as well. I'm not sure if speech-to-text is good enough to measure the error rate here, yet, and I doubt there's an open-source system that will measure...

"Psychosomatic misattribution can also result in the prescription of harmful therapies such as GET, which can induce potentially permanent worsening of symptoms due to PEM [89,90]." (Thoma et al, link) I don't have the energy to chase down references 89 and 90 at the moment, but perhaps a...

The notion of sensory sensitivities as something that only applies to the bedbound is something I'd also challenge. I'm "severe" as defined by the NICE guideline, and I'd probably plump for level 4, being mostly housebound, but I've made lots of adaptations to accommodate sensory sensitivities...

https://archive.is/tbVHx