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I'm just basing it on what would logically make the most sense. The more extreme a pathology, the less likely someone would be to experience it, as it would take more things going wrong to a greater degree, which is less likely. It could be that's not how ME works. I don't have the energy to dig...

I assume they initially recruit people who say they are healthy, then they make sure they don't have ME/CFS. I'd like to know what that "making sure" part is like. Whether they question them in detail to determine if they might have PEM that they haven't recognized themselves. Not really...

I don't mean remove CCC from the inclusion criteria for the ME group. I mean add "not fulfilling CCC, IOM, NICE, Fukuda, or having any evidence of PEM" to the inclusion criteria for the control group. Maybe not, or maybe "healthy" to them might just mean no other diagnoses, and they didn't ask...

They didn't give any specifics about how they determined ME/CFS status apart from what I quoted about being diagnosed and fulfilling CCC. "Had a chat with Dr. Chia" doesn't tell us they used anything more than that. I don't mean they take people that signed up to be ME/CFS participants and if...

Where does that page talk about the screening phases? In the study itself, concerning ME status in recruitment, I just see this: "endorsement of ME/CFS symptoms and compliance with Canadian Consensus Criteria" As I understand it, CCC is strict so that false positives are minimized in research...

I'm not sure I understand either. He quotes a previous tweet of his about the Cook CPET study: One concern I have, is maybe some of these people have undiagnosed or very mild ME/CFS, being the cause of their deconditioning/sedentary-ness, which would make the comparison less useful. A...

Some people are trying to get the attention of news stations in her area:

$121,983 Open Medicine Foundation Canada: "In the coming weeks, we'll be sharing how your amazing support will be put into action. Stay tuned to see how we leverage this incredible day of giving to accelerate our research efforts."

That's it for the stream. Near the end, Kyle said there's a possibility for another fundraiser in the future. He said he has other organizations and researchers in mind, and some researchers have reached out to them to say they'd be interested in doing an interview. Over $109,000 right now, but...

...and post was removed from r/videos by the subreddit's moderators. No reason given as far as I can tell. Edit: Back up! I messaged the moderators to ask about it, and they said: "troll reports - reapproved sorry!"

Oh yeah definitely, every dollar helps. I was just curious about how much they were already getting.

To put it in perspective, in 2023, OMF received $2.9 million in donations, $5 million in grants, plus some smaller amounts from other sources, for a total revenue of $8.3 million. OMF financial statement

The reach this is getting is very heartening. It's the top post on r/videos, which has 27M subscribers and is the 15th largest subreddit. Over 1,000 comments, with lots of people curious about what LC and ME/CFS are, asking for information and educational resources. One person just commented...

Same author, and also has 26 ME/CFS and 26 controls, all female: An Explainable Artificial Intelligence Model Proposed for the Prediction of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Identification of Distinctive Metabolites, 2023, Yagin et al (Thread) Source given in that...

At about 43:40, her eyes go wide then she starts crying when he tells her:

Live stream is live now:

Maybe relevant: my dad and my dad's mom both had Parkinson's. I'm pretty sure I remember that my dad (not sure about my grandma) had loss of smell. I have ME (not caused by COVID) and loss of smell.

α-synuclein Seeding Activity in the Olfactory Mucosa in COVID-19 Medical University of Innsbruck Innsbruck, Austria Estimated study completion: 2023-12-31 Brief Summary Loss of the sense of smell is a characteristic feature of COVID-19 and likely related to viral invasion of the olfactory...

Ah ok, I'm still not quite fully versed in how VAT is calculated, but if this is true, I'm less worried.