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Always. And it's really pissing me off that it's pretty much always. I almost never notice framing that it's an ongoing scandal, even in writen articles you get a tone that things used to be this way, but have changed since. In a rapid conversation you can understand it, it goes so quickly, but...

Intuitively, it does seem reasonable that a change in the body would see changes in the neural networks that regulate them. In fact the opposite would be kind of odd, but then again biology doesn't care about making sense or being intuitive. Maybe this would in turn tell us what is being...

Seems spot on:

They have 1M+ samples waiting to be analyzed? Waiting for what?! They don't seem to have much of a plan in place. From the talks we can say that after 4.5 years of Long Covid, there are more researchers and clinicians interested in solving this, mostly it seems out of personal motivation. There...

Don't know why they settled for this odd framing of the most common disorder you've never heard of, it's not even true, and oh OK this is actually very much on brand for them to lie about this. But the second paragraph is just absurdly misleading and disqualifying, saying that FND "causes"...

You're not in traffic. You are traffic. Always. Want to reduce stigma? Stop engaging in it. You can teach that to kindergartners and most will get it after repeating it only twice.

That was excellent. Hard to make so many small points spanning the whole issue and its history but this was as good as it gets, plain, direct and very well-informed.

However interesting this could be from a scientific perspective, and how it's frankly unlikely to be of any relevance, I can't really much use for this kind of research focused on 'functional networks'. It's not as if this is something that is actually understood or medicine can do anything...

Ironically, if they had the whole thing could have been dismissed as nocebo and thus ignored. Which I'm sure some people will do anyway, with the absence of subjective awareness. Doesn't matter that it means the opposite, in psychosomaticland, everything is backward and you're always right until...

There is just no way this is good for anyone suffering from LC. Basically paying 3x over for negative benefits: the losses from people being disabled, health care resources being spent foolishly anyway, then psychologists doing more work that brings nothing to compensate for the other 2, which...

I don't think there's much that patients can be expected to do when a system so important, health care, is so willing to scam them, the public and basically themselves with junk like this. It's so blatant and insulting and no one in that system can't seriously claim otherwise. They know it's a...

Oh, public health is perfectly capable of doing that on their own, and have done quite well at being awful so far. Everywhere. To loud cheers from their peers, odd as that may be. They're quoting MDs and researchers, after all, and most MDs would agree and nod to this. Somehow. But in the end...

I strongly doubt that there is a reasonable chance that 'pragmatic' trials find anything useful without having a biological target in mind. If there was anything like this, given all the experimentation that has happened early on, it would have been found. But even in general, I would really...

Medical experts love to boast how they apply Occam's razor to good effect. They use the "horses, not zebras" analogy. Which is a huge stretch but whatever. Here, there is one and only one obvious main explanation, and it actually makes sense. But instead they seem to prefer basically hundreds...

I doubt they could ever do that reliably. Even with reliable antibody testing, which isn't really feasible at scale, there's far too much crossover. Unless they go with the most arbitrary cutoff of pre/post 2020, which is ridiculous. I've had ME/CFS for 16 years. I got COVID last month for the...

At some point they're really going to have to clean-up the nomenclature because this is outlandishly far from having anything to do with treating 'depression'. For all the flack that they give us about ME not being a valid name, antidepressant for this class of drugs is at least just as ridiculous.

Making Long Covid measurable: New Max Planck Center opens https://www.br.de/nachrichten/wissen/long-covid-messbar-machen-neues-max-planck-zentrum-eroeffnet,UOXB90O Close to the university hospital and therefore close to the patient: The new Max Planck Center in Erlangen is intended to...

Based on health records, pretty much the least reliable source, tainted on purpose by missing and distorted recording. After one year, 4.5 years into it. And not even a whole year for the ME/CFS, which we know they aren't seeing correctly: Framed entirely as a burden on the health care system...

Ah, yes, the old glutton diet, where you do two mutually exclusive things at the same time because it just works better this way. Because synergy. For sure they understand the meaning of the terms here. What smart people who pay attention to details they are.

It's pretty easy to see the problem. Homeopaths claim the same thing about their very expensive water. So does Scientology with their 'ghost detectors'. Claiming something without evidence doesn't make it any more true if it's done within the regulatory framework of scientific medicine using the...