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Association Between Chronic Pain and Fatigue Severity with Weather and Air Pollution Among Females with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Chloe Lisette Jones, Olivia Haskin, Jarred Wayne Younger Abstract Weather and air quality conditions have been anecdotally...

Environmental Exposures and Long COVID in a Prospective Population-Based Study in Catalonia (COVICAT Study) Apolline Saucy, Ana Espinosa, Susana Iraola-Guzmán, Gemma Castaño-Vinyals, Barbara N. Harding, Marianna Karachaliou, Otavio Ranzani, Rafael De Cid, Judith Garcia-Aymerich, Manolis...

Oh understood, but might upregulation of these proteins still be a consequence in that case?

Barely understand, but if the main idea, proteolethargy, is that a large variety of proteins are literally swimming more slowly through the blood, then maybe the body would upregulate all those proteins since it's taking them longer than normal to get to their destination - it would compensate...

A sort of quick abstract if you don't want to read it all I looked at red blood cell count, and it was positively correlated with brain fog in ME/CFS. High RBC might be a marker of low oxygen. I then tested all blood markers. After multiple test correction, total bilirubin (pos), relative...

Sure, just in me personally, it's hard to imagine myself reporting that one improved but not the other. If I feel less fatigued, I'll do more, then crash more, then feel more fatigued again. They feel very intertwined in me. But it is a little odd that they only mention PEM once, and not in...

I don't know. It's hard to imagine my fatigue significantly improving without PEM changing. Since fatigue is kind of a consequence of PEM, I'd assume it's likely I'm not crashing as bad if my fatigue score is better. And even if fatigue is literally the only thing that improves, I'll take what...

[Now published] RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome Alan Cash, Suzanne D. Vernon, Candace Rond, Lucinda Bateman, Saeed Abbaszadeh, Jennifer Bell, Brayden Yellman, David L. Kaufman Background: The energy...

I was also hoping for this thread to include discussion about COVID vaccine as a treatment for long COVID. As discussed in this thread: Link But maybe you're right that they should all be separate.

I do too, I just think there might be an immune system stimulation effect common to all vaccines which is the main effect, though of course with subtle differences between different vaccines. And it might be better to have a single thread to compare and contrast different vaccines in this sense...

Hypothesis: BCG vaccination as a treatment option for ME/CFS and Long COVID, 2024, Herbert Renz-Polster [Not peer reviewed] Abstract The Bacillus Calmette-Guérin (BCG) vaccine has notable “trained immunity” effects. It has shown therapeutic effects in autoimmune diseases such as type 1...

Gotta say, I laughed after I voted no and the results of 34 no's and 1 yes popped up. I do sometimes worry about if I'm underdoing it, but every time I push it, it's too much. I'm quite a restless person so it takes willpower to *not* do things that will cause crashes. Edit: But also, a year...

But also the "psychiatric" symptoms have pretty low scores at baseline. 0 is normal, 6 is worst. These are comorbid CFS+FM patients, so while they didn't ask about PEM, the most severe symptoms make sense for these conditions: fatiguability, aches and pains, reduced sleep, muscular tension...

Moderators or anyone: should this thread maybe be renamed so that the topic is vaccines in general as a treatment? I'm guessing there won't be much more news on staph toxoid specifically, and the working theory behind any vaccine as a treatment is probably pretty similar (i.e...

I think this is a followup of an acute COVID study: https://clinicaltrials.gov/study/NCT04369794 I think there have been a few papers on this "BATTLE trial": https://scholar.google.com/scholar?hl=en&as_sdt=0%2C5&q=jalalizadeh+bcg+battle&btnG=

What about this one? Though note the issues in the thread about blinding.

Yeah, he was going by Fukuda/CDC criteria in his practice originally. CCC and ICC weren't created until after this paper, and the paper doesn't mention PEM.

The RCT mentioned this paper, where Gottfries is also an author: -------- Nickel Allergy is Found in a Majority of Women with Chronic Fatigue Syndrome and Muscle Pain—and may be Triggered by Cigarette Smoke and Dietary Nickel Intake, 2001, Regland et al Bjorn Regland, Olof Zachrisson, Vera...

Looking at this paper, the second RCT by Gottfries: Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome--a randomised controlled trial, 2002, Zachrisson et al I haven't heard much about pregnancy being a trigger. Here are all the symptoms tested, with a star next to...

Here are the two RCTs they performed: Effects of staphylococcus toxoid vaccine on pain and fatigue in patients with fibromyalgia/chronic fatigue syndrome, 1998, Andersson et al Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome--a randomised controlled trial, 2002...