:) The BASC-3 people talk about patterns. I guess the lines help them see the patterns.
No doubt an experienced BASC-3 practitioner can identify a psychopathology complex with a glance.
Associate Professor Sarah Knight is a pediatric neuropsychologist and ME/CFS researcher based in Melbourne Australia.
She mentioned this paper in 2019 in an interview with MEAction.
https://www.meaction.net/2016/04/13/meet-the-scientists-dr-sarah-knight/
She carefully notes that she isn't...
2013 paper
Sarah J Knight 1, Adam Scheinberg, Adrienne R Harvey
Abstract
Purpose: A range of interventions have been used for the management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in children and adolescents. Currently, debate exists as to the effectiveness of these...
I'm sorry that I keep asking if you have read our BASC-3 thread. It's just I don't think you would be writing some of the explanations you have given if you had.
I'm copying part of the BASC-3 PRS report here also so that it is easy to see.
The rating of psychopathology is very clear, the...
Sure, clinicians who are not problematic now but were in the past are less of a worry than clinicians who were problematic in the past and remain problematic. Having found this clinician team to be problematic in the past, I'm just really keen to establish that they aren't problematic now. The...
Do you think it is likely that this team is producing Somatisation scores for the young people in this study so that, one day later when a biological mechanism for ME/CFS is found, a paper can be written showing how wrong the Somatisation scores were?
In any case, fans of somatisation could...
And yet, they have caused harm. Not least by diverting funds and effort away from collecting useful information. But also in diminishing people's trust in the medical system, particularly in diminishing young people's trust in the medical system. Probably also in some cases in solidifying...
Yes, I think some more clarification is definitely and urgently needed.
Sarah Knight and her team collect data using a survey that reports a somatisation score. If they don't think the disease is somatisation, then why are they collecting that data? And what exactly do they do with it?
Where...
Symptoms of Gulf War Illness were found in the soldiers fighting on the other side to that of the US soldiers, we have a thread about that on the forum. I'm doubting that they were given an anthrax vaccine.
The fact that there was still a strong relationship in the underweight category suggests that there might be some real association, separate from the confounding. That adjusted Odds ratio of 3.26 is a substantial increase in risk.
The authors are good at acknowledging all the uncertainties...
It's pretty good quality data, as far as anything to do with ME/CFS goes.
US NHIS data
Heart disease
CFS
I think ME/CFS advocates campaigned to get ME/CFS into the NHIS survey, so their efforts are bearing fruit. Has there been a separate paper on (ME/)CFS prevalence as estimated by this...
Sorry, I nodded off for a while. Back again.
I'd formed the impression that SARS-CoV-2 antibody levels weren't different in Long Covid, although interesting that the studies you found @forestglip suggest otherwise.
That chart that @forestglip posted, the relationship between GWI score and the...
I haven't read this yet. It sounds interesting, especially the bit about soldiers effectively getting Gulf War Illness but not having been in the Gulf War and not having been exposed to sarin.
Both authors are from
It's good to see researchers from the US Dept of Veterans Affairs taking GWI...
:rofl: The poor lambs. It's so hard for these well-paid, well-respected doctors to feel incompetent in the face of 'a great difficulty answering patients when asked about the origin of their suffering'.
The answer? An agreement on an unevidenced story to tell, and some group meetings with...
I've searched, not very hard admittedly, but I could find no warning saying to use the BASC survey with care in populations of children with medical conditions.
There are surveys that could be used in ME/CFS instead of the BASC, with its aim of identifying psychopathologies, in order to identify symptoms and mood issues, both for research and for clinical care. You would probably still want to add on questions for ME/CFS specific symptoms and something...
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