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Where do you get NSAID for PEM pain from? Afaik, there are many patients that report that nothing helps for their pain, so at best, it must be a subgroup that responds to NSAID?

Can we do this for non-drug treatments as well?

That’s bad..

Vink M, Vink-Niese F. Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for long COVID? Rethinking of a systematic review. SciBase Neurol. 2025; 3(1): 1026. PDF Link Thread on the review that the paper criticises...

Would we have to account for the anecdotes of LP recoveries as well?

Regularly questioning your assumptions is probably a good quality when trying to figure out something difficult!

I’ve had this for a few months. It coincided with very little sleep, but I believe the worsening came a few weeks before the most severe part of the sleep issues. Nowadays, my head wears out during the day and somewhat resets if I get enough sleep. I have a history of getting far too little...

That’s a good point that I don’t know how to answer!

It’s not a test to see if something is the ME/CFS mechanism(s). It’s a test to see if it can be the ME/CFS mechanism(s), because whatever it is, it has to be able to explain the features we’ve observed.

After reading the conclusion again, I noticed that the only said there’s a need to figure out how to best deliver interventions to different groups, not how to best deliver these interventions. Not that the BPS lobby has a good track record of honest interpretation of statements..

Reme already has a study on hypnosis of breast cancer patients before their surgery. With funding from Kreftforeningen! I would assume they would be opposed to BPS BS, but that’s apparently not the case.

I have to say I’m a bit worried about this review. Specifically, I’m worried that it’s going to be used as an argument to provide relatively meaningless treatments just because some patients in mostly flawed studies said that they liked it. There’s a summary in English in the full report, but...

‘There’s no cure, so here’s how to cure it regardless.’

I have massive problems with that as well!

Sure, but what if they have pain, but not fibro? Could this test possibly lead to them no exploring alternative causes for the pain if it’s positive? I don’t think we know of this is just a marker for pain or if can differentiate based on the cause of the pain.

Could it instead be related to the exertion relative to their physical capabilities? And especially repeated over-exertion? I don’t know much about overtraining syndrome, but I’ve heard some claim that it’s quite similar to ME/CFS.

How would a competent physician deal with the possibility of false positives?

Good point. It doesn’t seem like it should be applied to abuse cases. Edit for context: Part of my anxiety that I describe above stems from bullying. My therapist never asked me to consider what the bullies thought or felt.

I have personal experience with parts of process two and three in a therapy setting, but my therapist never claimed that she could do anything for my physical symptoms. Working through my emotions really helped my mental health and it also reduced some transient physical symptoms that were...

Here’s an overview of EAET (my bolding except for titles) The first part is mostly just make-believe and gaslighting. I can see how it could be useful to get some help going through your complex emotional experiences, gain increased emotional clarity and develop strategies for addressing...