I think most people have gotten this study completely wrong. The primary endpoint on this study was changed according to the pre-registration page. Two of the authors are co-founders of GenieBiome, which makes SIM01.
More notes here...
I find it disturbing that you would attack people like @organichemusic for a honest attempt at gathering data. She is engaged in legitimate scientific exploration and there is no reason to attack people like her or to malign such work as carrying 'a real risk of harm'.
While survey data is not...
Yes, I did the research and put together the video.
If I may politely ask... can we steer these conversations back on track? As you know... ME/CFS, Long COVID, etc. are all very serious conditions that turn people's lives upside down. We have an opportunity to put patients first and to...
This is an analysis of what recovered patients rated highly out of over a hundred treatments/interventions surveyed. The data suggests that extended fasting, ivermectin, black seed oil (nigella sativa), high ATA HBOT, statins, and Plaquenil/hydroxychloroquine are among the top treatments...
Mod note: Merged thread about a video that makes claims about COVID-vaccines in chronically ill patients
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https://odysee.com/@LongHaulWiki:2/COVID-vaccines-in-chronic-illness-patients:d
Genome-Wide Association Study data on ME/CFS suggests that hypermobility isn't caused by genetics. https://www.medrxiv.org/content/10.1101/2022.09.09.22279773v2
That points towards some environmental factor that led to hypermobility before the onset of ME/CFS.
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I've collected very basic...
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