Thank you for sharing that. I certainly won't be going off the Rinvoq since it has my ra under control, but I don't know if I will be raising the...
This is interesting to me. Again, I'm going by a statistical sample of one-- me-- but I have found the few times in the last 15 years that I have...
Caveat: I am not a scientist and this is just a one-person anecdote I will say that I have had juvenile onset rheumatoid arthritis-- yes I know...
Definitely, Peter, and if I didn't have medications that need to be taken, or need nourishment (my gastro doctors, because of my gastroparesis,...
Thank you, Belvawain. I appreciate knowing I am not the only one, and I also was interested in hearing what helps you. It looks like you are a...
Thanks. That's what I was guessing but figured it didn't hurt to ask
I have been trying to get aggressive rest as much as possible but think I still may be Long-Term pem partly because I can't limit all activity--...
Before I got my gastroparesis diagnosis, one of the first things I noticed was that when I ate yogurt, one of my favorite foods, I would belch and...
I think of gastroparesis as a longr-term condition, but yes, it is possible to have a gastroparesis flare and diarrhea at the same time. Im...
Thank you so much, @shak8 . Definitely if I had just been taking clonazepam PRN, I'm sure I wouldn't have become habituated, but I don't tolerate...
I'll have to look up medications that you mentioned. I will say that I am doing a lot better having started hydroxyzine, although I am really...
I'm on a lot of meds just to allow me to sleep. Without even one of them, I, like many of you, get ever increasing insomnia that leads to heart...
Horton, I don't experience this right at the moment of falling asleep, as you do, but I am experiencing thermal dysregulation ( I always need the...
When I was mild, I was exactly this way. And unfortunately that meant that I overexerted by doing things like laundry and grocery shopping-- this...
What is the safe foods list? As an update, I am now using the visible Plus app with the polar Verity sense armband, and it is really helping me...
@ That helps hugely. I'm in what others here have helped me to see as compounding or rolling PEM, though I'm trying to get better with pacing...
Samuel, Kitty, and Arnie -- everything you describe, especially about air hunger and hyperventilating, low blood O2 saturation, etc, fit with what...
I don't have an oximeter, but every time I get in measured at a doctor's office or in hospital, my O2 level is normal.
For many years, and especially when I have PEM/ crash, I've found myself lying in bed, and breathing seems to take too much energy. A better way...
I think I still don't understand the difference between PEM and an ME flare in my own body.
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