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  1. Purple
    Post

    Success or otherwise of NHS Long Covid clinics

    I hadnt' come across that term before: performative healthcare. That's exactly what it was
    Post by: Purple, Nov 10, 2023 in forum: UK clinics and doctors
  2. Purple
    Thread

    Success or otherwise of NHS Long Covid clinics

    After a poor experience at one of the UK's main Long Covid clinics, I was wondering what value they offer. Are there people who feel these clinics...
    Thread by: Purple, Nov 2, 2023, 4 replies, in forum: UK clinics and doctors
  3. Purple
    Post

    Antihistamines

    Update, my husband completely recovered after switching to the second combination of anti-histamines advocated in the above article, plus taking...
    Post by: Purple, Nov 2, 2023 in forum: Drug and supplement treatments
  4. Purple
    Post

    Cytokine deficiencies in patients with Long-COVID, 2022, Vicente Planelles et al

    This paper has now been published: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9894377/ . They try to address the differences between their...
    Post by: Purple, Feb 14, 2023 in forum: Long Covid research
  5. Purple
    Post

    Antihistamines

    M My husband has been following a protocol advocated here (under Mast Cell Activation Syndrome):...
    Post by: Purple, Feb 14, 2023 in forum: Drug and supplement treatments
  6. Purple
    Post

    Antihistamines

    If you scroll down to MCAS in this article, you'll see the dosages that Paul Glynne recommends:...
    Post by: Purple, Jan 7, 2023 in forum: Drug and supplement treatments
  7. Purple
    Thread

    Evidence of GET (and exercise generally) being helpful or harmful in ME/CFS and related conditions

    There's a thread dating from four years ago about GET and whether there is good evidence it is actually harmful. I was wondering whether there has...
    Thread by: Purple, Dec 27, 2022, 28 replies, in forum: Psychosomatic theories and treatments discussions
  8. Purple
    Post

    Antihistamines

    I've now found the generic version from a reputable online pharmacy but, as pointed out above, it is pretty expensive. Thanks for the insights...
    Post by: Purple, Dec 12, 2022 in forum: Drug and supplement treatments
  9. Purple
    Post

    Antihistamines

    Thanks for this. My rationale is more to do with recent trials that have been started looking at a combination of H1 and H2 antihistamines for...
    Post by: Purple, Dec 11, 2022 in forum: Drug and supplement treatments
  10. Purple
    Thread

    Antihistamines

    U.K. Where to buy pepcid/famotidine Hi all, we want to try famotidine as a treatment for Long Covid but I have discovered that Boots does not...
    Thread by: Purple, Dec 10, 2022, 32 replies, in forum: Drug and supplement treatments
  11. Purple
    Post

    Fatigue and perceived fatigability, not objective fatigability, are prevalent in people with post-COVID-19, 2022 Fietsam et al

    Hi Hutan, thank you for the welcome. No I don't have an association with the study, I just saw the discussion and wanted to know what people...
    Post by: Purple, Dec 10, 2022 in forum: Long Covid research
  12. Purple
    Post

    Fatigue and perceived fatigability, not objective fatigability, are prevalent in people with post-COVID-19, 2022 Fietsam et al

    sorry for the delay in answering . here is the study
    Post by: Purple, Dec 9, 2022 in forum: Long Covid research
  13. Purple
    Post

    Fatigue and perceived fatigability, not objective fatigability, are prevalent in people with post-COVID-19, 2022 Fietsam et al

    It spends some time exploring the idea that brain hypo-metabolism could be the cause of the perceived fatigue. It cites previous studies to...
    Post by: Purple, Dec 6, 2022 in forum: Long Covid research
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