No, of course I won’t be doing that. Don’t be silly. You haven’t actually presented any evidence that the project would be unsuccessful, or any...
Thank you for the clarification. I can understand the distinction you are making and can relate it to my own experience. I will add it to the...
Im afraid I am not familiar enough with this system to reply each of your replies to my replies to your comments (!), but thanks and they are noted.
I appreciate Andy, and all the forum members' input. My further comments were an attempt to highlight the context and some of the multiple...
Hi Ash Im trying to understand where you are coming from. What is the principle on which you object to 'these forms'? As I’ve said before the aim...
thanks for the heads up, we will amend asap.
I don't understand, 'very severe ME' is included. It is covered in level 5. If you feel it isn't covered, please could you suggest what should be...
Hi Jonathan The aim of the PASS is to help PwME and clinicians work out what is happening, and give some pointers about how to manage it. It is...
Finding one's baseline is indeed a challenge, and understand that you have not been able to find it or any effective strategies. However, finding...
The point of hte survey is a) for people to complete it so we can use the scores to statistically refine the structure of the assessment to ensure...
Trish, the aim of the assessment is ask abut the main features of PEM, how bad it is, and how it impact son people's lives. So how/why is it a...
Hi Trish. I am sorry you have found the survey difficult to read. We had toned down the contrast between the text and background because people...
Hello again Andy I can see you are a chap who likes great precision and specificity in the way questions are presneted, which is fair enough, but...
Hi Andy Im not sure that I understand your problem with Q1, people answer yes if the have 'it', whether they call it ME or CFS. There is nothing...
At the risk of repeating myself, I said that physiological monitoring had a great deal of potential (based on my knowledge of these results and my...
Trish - we already have a group who are doing this. All of the research team (ie the co-applicants on the grant) except the statistician have...
Dear All I'm afraid it is beyond my technical skills to work out how to reply individually but to explain why we closed applications to the...
the aim of the project is not to assess services, it is to work with pwME and clinicians to develop good quality tools to do so.
thank you
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