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  1. Pilk

    Circulating cell-free RNA signatures for the characterization and diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Gardella+

    I don't have the full article text, but always positive to see the IOM/NAM diagnostic criteria in the citations, particularly after DecodeME.
  2. Pilk

    Australia: News from Emerge Australia

    Emerge is not a well resourced charity. To be brutally honest, this rebrand makes their limited means very plain. It looks like an amateur in-house job and they ought to ask for a refund. This is a step backwards.
  3. Pilk

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    https://www.reddit.com/r/illnessfakers/comments/15mbv7m/jessi_is_experiencing_medical_burnout/jvi71t1/?context=10000 Med student shares their astonishingly ignorant views of ME/CFS: Edit: * Note the author here is on a subreddit discussing subjects that almost certainly do have Munchausen's...
  4. Pilk

    Anyone who lost taste/smell as a result of Covid - Have you improved?

    I lost my sense of smell at about day 5 of the infection, after the worst of the other symptoms was over. I think it lasted 3 or 4 weeks after which I returned to full olfactory capacity. I will never take my sense of smell for granted again.
  5. Pilk

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    I undertook h. pylori treatment recently. For those unfamiliar this involves 7 days of reasonably high dose of two antibiotics, one of which can affect heart rhythm. According to the Visible app there appears to be a clear dip in my HRV associated with that 7-day period. I experienced the...
  6. Pilk

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Have they even published any results from their n=2 study? That was reportedly started in February and by the original plan should be well and truly over by now. Of course, in the intervening time, they have extensively modified the protocol and otherwise discussed publicly at least half a dozen...
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