Search results

  1. M

    Esther Crawley

    i It’s so nice to see that one of their advisors is Paul Miller. Must be a great comfort to them.
  2. M

    Familial coaggregation and shared familiality of functional and internalizing disorders in the Lifelines cohort, 2025, Bos et al

    make “unrefreshing sleep and concentration problems mandatory” the characteristic sleep problem of ME is reversal of the day and night rhythm and I don’t suffer from unrefreshing sleep. You don’t need to have concentration problems and I certainly don’t have them. I have bad cognitive problems...
  3. M

    The PACE Trial’s GET Manual for Therapists Exposes the Fixed Incremental Nature of Graded Exercise Therapy for ME/CFS, 2025, Vink et al

    Thank you, but I didn’t think it was. That’s very true and as always there is always criticism during the peer review process but also a compliment in the form of “excellent paper”.
  4. M

    The PACE Trial’s GET Manual for Therapists Exposes the Fixed Incremental Nature of Graded Exercise Therapy for ME/CFS, 2025, Vink et al

    No that is not correct. I had challenges because of the severity of my disease but also because it’s an extensive analysis of the Anomalies article.
  5. M

    Opinion CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that, 2024, Vink

    Professor Todd Davenport, specialist in exercise physiology, commented on the study’s findings in the following manner: “The analysis is so spot-on. Thank you for getting it out into the world.”
  6. M

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Thank you. I had difficulty finding that sort of literature which shows the problems of GRADE. Can you recommend a good article about that?
  7. M

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    In other words you are the exercise physiologist and they are not? “To document and assess PEM in CFS, a 2-day CPET was conducted to measure baseline functional capacity (CPET1) and provoke PEM. Twenty-four hours later, a second CPET assessed changes in related variables, focusing on PEM...
  8. M

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    “The 2 day testing protocol is particularly helpful in documenting post-exertional malaise (PEM) and symptom exacerbation following physical activity” https://workwellfoundation.org/testing-for-disability/
  9. M

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    The answer is actually pretty simple. If the original article is open access which it is, then a response should also be open access, but sometimes as we have seen before that needs to be pointed out to the (editor of the) journal
  10. M

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Well, for example, from that anomalies article: “PW…receives personal consultancy fees from Swiss Re reinsurance company”
  11. M

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    “a substantial number of patients with severe fatigue do not have deviant physical activity levels“ yes obviously, if you are very tired, your level of activity is the same as when you’re not tired.
  12. M

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    That was a quote from the recover study, or I should say from the reply from the authors from that study, so they say that applies to the people with long Covid in their study. and I fully agree with you it doesn’t make sense, it sounds more like a copout.
Back
Top Bottom