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  1. MrMagoo

    ME/CFS classed as 'Acquired Neurodivergence' by some DWP Access To Work Coaching Companies

    Controversial take - towards the end of my time working I was following ADHD coaching advice, because my executive functioning, verbal/listening/organisational skills were trash. I also might have ADHD and was just unable to mask due to being exhausted. Who knows? I would have benefitted from...
  2. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It’s cognitive dissonance but squared? Cubed?
  3. MrMagoo

    ME/CFS Atlas site

    Same for me - top Google result and I didn’t search or click it previously
  4. MrMagoo

    United Kingdom: ME Association news

    At least green feet would have the benefit of being amusing!
  5. MrMagoo

    United Kingdom: ME Association news

    You were there to receive medical advice and I’m sorry you didn’t. You aren’t there to grade their performance or correct errors. I’m really glad you contributed your experience here though. Very worrying they are operating in this way. The advice not making it into the GP letter just shows...
  6. MrMagoo

    United Kingdom: ME Association news

    It’s scarily low - and what the heck is the reasoning behind it?
  7. MrMagoo

    United Kingdom: ME Association news

    That’s against NICE guidelines NG206. It’s probably against NHS healthy eating guidelines. It’s really disturbing. Did they say why so low calorie?
  8. MrMagoo

    United Kingdom: ME Association news

    My guess would be you’d be asked to do the “cure-all” online healthy eating course to lose weight before you can be assessed. I had to agree to do that for different reasons (pre-diabetic) it was utterly unsuitable for someone who can’t shop or cook. And the classic “just ignore the exercise...
  9. MrMagoo

    United Kingdom: ME Association news

    I argued and fought for a dietician appointment, and I got one. The advice was to eat what I can and not worry about losing any weight, I should keep it on to keep me going for when I lose the ability to eat. So why are people being denied healthcare on the basis of BMI? That’s the more...
  10. MrMagoo

    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    What a short, brief “to the point” intro.
  11. MrMagoo

    ME/CFS Atlas site

    I’d be up for a dull admin task which requires very low skills like categorising papers by type and number of participants (I am famously not at all scientific).
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    And yet, he does. It’s fascinating.
  13. MrMagoo

    A crumb of a clue on epidemiology

    I dunno what about ME searches compared to education, income etc. The lower states are warmer aren’t they? Rainfall vs ME? The southern states have the Lyme ticks I think.
  14. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He says that he was told he met the Canadian Consensus Criteia for ME. He wasn’t diagnosed. He really should have got himself referred if he was concerned, but then he recovered so I guess there wasn’t time.
  15. MrMagoo

    A crumb of a clue on epidemiology

    Those companies constantly update their information as well. I’ve had several updates and at one time was showing some German ancestry which then disappeared! For me it’s not that serious to do the “where am I from” dna because I knew it already, it was confirmed by the dna test, and I’m not...
  16. MrMagoo

    A crumb of a clue on epidemiology

    In colloquial language terms, is it worth trying knackered Shattered Puggled Deid I’m sure there’s a massive influence on results of English being the lingua Franca as well as English-speaking countries being generally populous and with good access to decent internet and healthcare (apart from...
  17. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Justice For ME They have added some personal profiles on their fundraising page:- Catherine Hale, Naomi Bem, Madeleine Wallner, Galen Warden, Sarah Boothby...
  18. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    I had an update from Justice for ME. It's been a long time since we wrote to thank you for your support. We've been working hard with our lawyers to make sure they understand how PEM (post exertional malaise) is the threat to people with ME, the risk for NHS services to manage, and the biggest...
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