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Well I think steps, sleep, and heart rate would be a decent start. You would also have the advantage of the subject not knowing they were being monitored. And it would be interesting to survey how many pwME experienced a remission and whether it lasted or not.

I’m not sure 6 months of data will do it. But I do have 10 past years of data.

Some food for thought - I understand the desire to sort-of square the circle, but how about something the other way round? No, it’s not scientific, but we have a really engaged group of pwME who have been ill for years. Why not a survey of how it changed (or didn’t) over the years? I myself had...

I will say to you, I understand as I have been there, you are falling into a trap of writing/evidencing more. You need to instead keep stating what you’ve already said, say the same thing again and again - to all the different people. You will then be consistent and not tied up in volumes of...

Seconded. Benefits and work has a discount at the moment, also someone here recommended Charlie Anderson on YouTube, she has a few guides for free as well as her videos.

I got 0 points even though I can’t speak most of the day and have to use pen and paper to communicate (for which there is specific case law that says that scores points) they said this category is “for people who are deaf”

I feel like we’re the last “lost tribe” being studied by imperialist victorians ascribing our reasonable human behaviours and traditions to their own prejudices. They’re endlessly fascinated by our primitive, fecund, unsophisticated society and how we think glass beads are amazing. Who will...

It turns out my data is in his 2012 paper on “over-diagnosis” of “CFS” as a patient who turned out not to have it and have Fibromyalgia instead. I’m tempted to look into how my data could have been used in this way without my consent. Also I can clearly identify my data in the report.

Well that just confirms he’s obtuse, unless he changes his avatar which is the widely-publicised photo of him….wearing a white coat. So is he reading here? Hi Josh, I don’t agree with your behaviours. Let me know when there’s a published trial outcome ready for peer review.

“Not a clinician and never claimed to be” ok what’s the white coat about, then?

I am really keen to fight memes with memes. I think theyre so underrated as a communication tool. I know we can’t meme everything but they can cut through bs really well.

We used to sing born free, ‘til somebody caught me…

I wonder whether this is the “big news coming next year” that caused our concerned brain training visitor (Paul Garners colleague or friend) to be worried about us all when it came out!?

Oh Tret is what all the 40+ skincare gurus are using. I see this was already mentioned. This kind of reminds me of Bryan Johnson, known as the “don’t die” guy. He is a retired tech millionaire as well, although he’s mainly experimenting on himself and Co-incidentally sells the supplements he...

Three years without it was torture. 100mg after waking stops me from going back to bed. It won’t work for everyone, and I don’t start dictating what others should do just based on my own experience! I think it’s fine if the BF thing helped him, or he thinks it did. Not any of us are where he...

Three years without it was torture. 100mg after waking stops me from going back to bed. It won’t work for everyone, and I don’t start dictating what others should do just based on my own experience! I think it’s fine if the BF thing helped him, or he thinks it did. Not any of us are where he...

I’m very pro-caffeine

What an amazing Co-incidence!

I think it might be ego/biohacking bragging rights. Apparently he is a tech millionaire who retired early so this is his pet project. He’s obviously quite clever but that’s doesn’t make him right. Stockton Rush was very clever and rich and died when his submersible imploded.

“Sugar and caffeine combo provides immediate boost for pwME” shocker.