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It is! Thank you!

I saw a blog promoted on socials the other day by Tom Kindlon, but I can’t find it now. Anyway it was an OT who explained that pacing is “harm reduction” (or should be) that it’s not compatible with real life to expect you can do it brilliantly but each bit of pacing you do well reduces the...

I think Kate got into debt paying for care, but was highlighting that many people wouldn’t have even the option of taking on that much debt. Which was a fair point for her to make.

The usual suspects have terribly high sickness - HMRC and DWP. Mental health was the most common reason. By grade the lower and higher grades had higher sickness, by region London had lowest. “Civil servants” includes the person working at the job centre, the person writing to you because you...

May their memory be a blessing

Simon, the feeling was mutual.

Working as a PIP assessor is so stressful that leaving healthcare seems like a better alternative. Plus there are plenty of healthcare workers who don’t do it because of a vocation but for interesting work, job security etc.

Working in the NHS is so stressful that being an assessor starts to seem like a decent alternative.

Looking after your own needs when you look after others doesn’t cause moral injury though, it’s usually more depression or guilt.

That’s a slightly different thing. Moral distress or injury is where you go into a role to do “good” and help people, but in the role you’re prevented from doing good, in fact you’re doing bad. So if you become a PiP assessor to help the “genuinely” disabled but actually you have to see 20...

Moral distress in the workplace, can lead to PTSD. Very common in the modern NHS https://www.bma.org.uk/media/4209/bma-moral-distress-injury-survey-report-june-2021.pdf

Best glass nail file I’ve found is from Shein. They need to be the “etched” type rather than coated in ground glass. Cost of living blah blah has reduced to junk, all of the metal beauty items (nail file, tweezers etc) I used to use for years. They have become so flimsy as to be useless...

I’ve seen it happen in broadsheets, it’s quite common

Is the problem that everyone isn’t exercising enough? Not just us, but ordinary people too! (Is this sarcasm? I might be being facetious IDK) How do you find someone as sedentary as us who isn’t ill?

I was in rolling PEM for a few years, there were diminishing returns each time but I was convinced I had to keep working. No idea if I did catch covid or just massively crashed from that, losing my job etc but lockdown was very convenient. I struggled to brush my teeth or shower, I didn't go...

Final in a series of posts moved from a thread about a specific patient But this is exactly what I mean. There’s nobody working at the hospital who is an ME expert or practitioner, there’s no “leader” on the ground saying “of course she needs a blackout screen, why would you think we should...

I honestly think it’s prejudice. There will be staff involved who are prejudiced and either don't think ME is real, or don’t care. They have a “difficult” patient so goodwill erodes and suspicion increases. Staff who weren’t particularly prejudiced start to agree that something isn’t right with...

Appropriate support Or ME- specific support I think are useful because even though it can seem nit picky, like “treatments” the average bystander could list all kinds that are available , and none of which are any use to us. It’s not just the case of stopping the BPS crowd criticising (they’ll...

I just threw this together, obviously it’s terrible from a design point of view, but I think you get the impact if you saw it on insta etc.

My only thing is be careful of using “help us find them” or”support us” when you haven’t previously stated that its answers/effective treatments/ pwME, it doesn’t always make sense on its own. I think that where these slogans are being used by Science For ME then that helps with the...