Search results

  1. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I received my £150 winter fuel letter this weekend!
  2. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This was one of them https://assets.publishing.service.gov.uk/media/6762b502ff2c870561bde779/UA-2024-001023-PIP.pdf I use this site https://pipinfo.net/ NB this might be overwhelming if you’re not familiar with the law or PIP, for me I worked in court and had a little bit of experience, I...
  3. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    I assume that there should be “some” continuing effect because both contain a GLP-1 receptor agonist. Wegovy was always the slower losses/less losses overall when compared in trials though.
  4. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    Very soon I’ll be evaluating the difference between Mounjaro and Wegovy / tirzepatide and ozempic
  5. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I do the same but I do it ahead of time, then still need extra time! They don’t have to give actual reasons for their decisions though. I literally cited case law last time.
  6. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Honestly just tell them you’re unwell and need an extension, I always do that, it’s fine. If anything it should help!
  7. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Advice here https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form-pip/3-prepare-and-cook-meal/ I would say you should do a lot of research and join Benefits&Work if you can afford the £20, PIP is a different language to English and...
  8. MrMagoo

    Should we initiate development of a new, short questionnaire to identify PEM (to aid diagnosis)?

    Can Ijust say that I’m in the Peter White study as someone who didn’t have ME, according to Peter White who cited Oxford Criteria. However, numerous other specialists disagree, citing evidence of PEM in Peter’s notes of his assessment of me. Also my dna was used in DecodeME. What I’m saying is...
  9. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I see that successful PIP claims and appeals are dramatically down, according to benefits and work. I maintain my suspicions of “secret” rules behind the scenes. Whilst I have not been assessed, at my tribunals it’s very clearly an exercise in “how to disregard” certain evidences. All of my...
  10. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I think they slightly changed the category names as well
  11. MrMagoo

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I’d be looking for something in his life that he wanted but couldn’t achieve and turning it back on him!
  12. MrMagoo

    Patient-Reported Treatment Outcomes in ME/CFS and Long COVID, 2024, Eckey, Davis, Xiao+

    I had the CBT of old, as an accompaniment to GET, the CbT was telling you to do GET. So basically I used to just lie because I thought it was nonsense, unscientific and unhelpful. “Why yes, I did walk an extra 5 minutes per day and I do feel better for pushing through!”
  13. MrMagoo

    On fatigability and rationing as improved terminology over fatigue and pacing

    I have fatigue and fatiguability, but I agree with your point “stamina” which is how I usually explain limitations to others “I wouldn’t have the stamina to chop and cook carrots/I don’t have the stamina to go outside every day” etc
  14. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    I don’t have any science behind my belief, just that I feel my energy is more consistent, and so I can do more, but I also can easily overdo it as the usual signals like hunger, dizziness don’t come. I still very clearly have ME, just “better managed”. I also sleep a lot more on the Mounjaro on...
  15. MrMagoo

    Review Fatigue: a common but poorly understood symptom in neurological and non-neurological diseases 2025 Penner et al

    Neuroticism is prevalent in ME, ME, Parkinson’s…seems is a risk factor for fatigue. Really? Am I understanding neuroticism correctly? Is there a meaning beyond the popular one?
  16. MrMagoo

    The scientific basis for fatigue, 2025, Martin et al.

    Does this book aim to induce fatigue in the reader, desperately searching for a definition, coherence and dare I say “the point”?
  17. MrMagoo

    Do you have fever as a part of PEM?

    I get “fake flu” it feels like flu and I feel like I have a temperature but I don’t, I’m always still 36.2 maybe 36.3
  18. MrMagoo

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    And she is peddling this nonsense as a Dr of Neurology at “The Cheltenham Literature Festival”, promoting her populist book? I am imploded from the irony. She should stop making sub-sixth form hot take books and courting the press her whole personality, and go and do some medical treatment on...
Back
Top Bottom