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What did the paper you worked on conclude? That is the topic of this thread!

but is all this in relation to the study this thread is about? I’m not sure this answered the two questions I asked that you, can you answer with a sentence please?

Ok did it answer why do some become ill after infection (of Mono) and develop ME, or Covid and develop LC, others don’t? Am I right in summarising you looked at biology before and after infection? In what ways did the biology change? What caused the change in some and not others? Was it the...

When contacted, Peter White said all these criticisms are old news… He’s not wrong, that’s the thing when they’re valid.

I’m sorry I don’t understand what Il-5/6/13 means I don’t understand how the cytokine irregularities are measured is it by a lab test?

Genuine questions- What was the value of this study anticipated to be? what was it about the possibilities that got a team so fired up as to invest their time in it?

I was remembering my old job the other day thinking about a project we did and the Gantt charts lol. All the interdependencies. Basic project managment. Why are interdependencies so alien to medical research? If you see ME/CFS symptoms as interdependencies it’s makes it so simple.

We are not asking for naratives to be used or quantified though. As per usual with ME/CFS, it doesn’t follow a neat pattern, it doesn’t fit into any of the boxes we have. If the existing framework of methodology, IRB guidelines, peer-reviewed publications are making it impossible to research...

Exactly Reminds me of a post recently where another forum member explained that Long Covid has a severity scale of its own, but Severe in Long Covid is only similar to mild ME. These concepts are already well-established.

I want to know why they are funding it and how come their comms officer is a part of the research team.

I appreciate you coming back and what you’ve written. I myself am not a scientist, but I can name off the top of my head two other researchers in the past two years who complained about one way or another about the attitude from patients and implied they won’t keep helping or we are “known”...

Sadly, we get a lot of help we didn’t ask for, don't value, didn’t want and then are blamed by the people who cannot take any criticism. You can’t please all of the people all of the time. That’s part of life. Just as you are not “just” a researcher and scientist - you also have ME, in this...

Controversial take - towards the end of my time working I was following ADHD coaching advice, because my executive functioning, verbal/listening/organisational skills were trash. I also might have ADHD and was just unable to mask due to being exhausted. Who knows? I would have benefitted from...

It’s cognitive dissonance but squared? Cubed?

Same for me - top Google result and I didn’t search or click it previously

At least green feet would have the benefit of being amusing!

You were there to receive medical advice and I’m sorry you didn’t. You aren’t there to grade their performance or correct errors. I’m really glad you contributed your experience here though. Very worrying they are operating in this way. The advice not making it into the GP letter just shows...

It’s scarily low - and what the heck is the reasoning behind it?

That’s against NICE guidelines NG206. It’s probably against NHS healthy eating guidelines. It’s really disturbing. Did they say why so low calorie?

My guess would be you’d be asked to do the “cure-all” online healthy eating course to lose weight before you can be assessed. I had to agree to do that for different reasons (pre-diabetic) it was utterly unsuitable for someone who can’t shop or cook. And the classic “just ignore the exercise...