Search results

Thank you very much for your important question. Not at this stage of the project due to the capacity of the research team, but we are aware that this is also a very important area of research and hope to consider going forward. *Edit* I am revisiting this with the research team as I want to...

Of course - thank you very much for your feedback. Hugely appreciated, we really want to make sure we get wording right so will correct this going forward. Emma

Hi, Thank you for your comment -- of course. In terms of the research area, it is intentionally broad at this stage as one of the aims of the project is to "identify which areas of research men with ME/CFS think are most important". It will be a mixed methods study including an online survey...

Hi All, A brief description of your project: I am a researcher at Newcastle University, and we are looking to secure some funding to research ME/CFS in men - the project is not currently funded, this PPI is to inform the grant application we are working on. The number of PPI members you...

Thank you so much for your feedback -- As this is only a small pilot study we are testing what does and doesn't work well, and looking for feedback on what we have done this time round to help us shape future research plans. This project doesn't include access to gynaecology treatment generally...

Hi, Thank you for your question. I know this would be really helpful, but unfortunately we aren't able to provide this for this questionnaire -- We do state that "As the number of questions you will be asked depends on your own personal experience, we are unable to provide an estimate of time to...

Hi, and thank you. I have ME/CFS myself and had a baby in 2022. I realised when my husband and I were starting to think about whether or not we would be able to manage etc. just how little evidence there is, and the implications this has for practice. My background as a researcher is in parental...

Thank you :)

Hello, I am part of a team of researchers at Newcastle University – funded by the ME Association, interested in finding out more about family planning, pregnancy, and raising children for people with ME/CFS. The overall aim of this exploratory study is to highlight research priorities, and...