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This is super disappointing to me. 1) that Nature Communication's waited 18 months to publish a response that was written a month after publication. 2) I think the arguments of this forum which I summarized in my article for the Sick Times were better. The work of the members of this forum took...

Not sure, but they allow free republication in any other news outlet, so if you have contacts at other publications they may want to publish themselves send it along.

About The Sick Times Mission statement The Sick Times is a journalist-founded website chronicling the Long COVID crisis. We report on the common, life-changing disease following COVID-19 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related...

Five reasons why the NIH should retract the “effort preference” claims in their intramural ME/CFS paper https://thesicktimes.org/2024/09/27/five-reasons-why-the-nih-should-retract-the-effort-preference-claims-in-their-intramural-me-cfs-paper/

!!!!!!

I’m trying to document the evolution of how NIH is defining’effort preference’ and their findings. From the study, to their FAQ and email responses to now Brian’s comments at the Invest ME conference seemingly downplaying it even more. I recall a comment on this thread or the other stating I...

Its the third sentence of the abstract!!! The first sentence describing any finding! and it is the thing they chose to try to correlate against every other test in the paper! I agree he is making the case that the finding should be retracted.

I would be curious to hear about experiences with this drug or separate generic combo. Approved in US in August 2022 for the treatment of major depressive disorder. Apparently the bupropion makes the DXM long lasting. The Bateman Horne center in Utah prescribes dextromethorphan 15mg twice a...

I did a remote long covid study at Mt. Sinai where they were looking at cortisol levels and all you had to do was report to labcorp in the AM. I did and N=1 but my levels were completely normal.

5. NIH used a column called "Reward is granted" It actually did not mean that, it just meant whether the run of probability was positive. Patients did not earn more "total rewards" than the controls. At no point were players told to maximize their total rewards or even maximize the number of...

1) To my knowledge, no letter has been sent to the journal. I would like to help get this over the hump and submitted and have some spoons for this 2) Jeannette had to send a complaint directly to AIRIO at NIH. Dakota already had his dismissed. I think there is a very high bar for the misconduct...

Unless I hear about about the effort to send a letter to the journal and can contribute there, I am now going to start working on a powerpoint presentation in hopes of doing a webinar or even making a youtube video. I plan to use the charts and graphs in this thread and hope that's OK. A wall...

What is the status of the letter to the journal? Is there any way I can assist?

Seems like this is one thing we haven't dug into yet. I would like to see a chart of all participants resting lying HRs and their standing HRs during the TTT.

Did the raw data for the autonomic testing make it on to mapMECFS?

I'm only page 20 of reading this thread so this may be addressed later. But by not doing a 2 day CPET they were able to keep "rather than physical or central fatigue" as a part of the main finding in the abstract. Had they done the CPET, saw it reduced on 2 day they couldn't blame it on your...

Just want to make sure everyone saw Betsy Keller's response in her recent 2 day CPET paper. She addresses ‘effort preference’ and the "not central or peripheral fatigue" claims from an exercise science perspective: "A recent study of post-infectious ME/CFS (N = 17) and healthy controls (N = 21)...

Just want to make sure everyone saw Betsy Keller's response in her recent 2 day CPET paper. She addresses the "not central or peripheral fatigue" claims from an exercise science perspective: "A recent study of post-infectious ME/CFS (N = 17) and healthy controls (N = 21) assessed a...

My account request was denied. "Thank you for your interest in mapMECFS. Unfortunately, the scope of our tool is designed to allow researchers access to preliminary results from studies, with the understanding that these results may not yet be replicated elsewhere. As such, our site is not...

Someone decided to make this the 3rd sentence of the abstract. "Among the many physical and cognitive complaints, one defining feature of PI-ME/CFS was an alteration of effort preference, rather than physical or central fatigue, due to dysfunction of integrative brain regions potentially...