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  1. Julia O
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Hi Carol, interesting! That does sound like a different process from what I'm looking at with this study, but I bet there are others who have...
    Post by: Julia O, Jul 30, 2024 in forum: Drug and supplement treatments
  2. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Hi Hoopoe - thanks! I've asked Chris and we can make it three participants if you'd still like to join us?
    Post by: Julia O, Jul 25, 2024 in forum: ME/CFS research
  3. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Thanks to everyone - we now have both of the participants for the Edinburgh neurosteroids/genetics PhD study.
    Post by: Julia O, Jul 25, 2024 in forum: ME/CFS research
  4. Julia O
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Hi Shak8, This review article gives a pretty good overview: Huang Q. et al. Research progress in brain-targeted nasal drug delivery. Front Aging...
    Post by: Julia O, Jul 20, 2024 in forum: Drug and supplement treatments
  5. Julia O
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Thanks Kitty, I will keep you in mind. It really is fascinating and I bet you're right about other people having the same thing but not joining...
    Post by: Julia O, Jul 20, 2024 in forum: Drug and supplement treatments
  6. Julia O
    Post

    Long read sequencing characterises a novel structural variant, revealing underactive AKR1C1 with overactive AKR1C2 .. severe fatigue, 2023, Oakley et

    Hi everyone, really nice to see the paper discussed so positively here. I'm happy to answer any questions.
    Post by: Julia O, Jul 19, 2024 in forum: ME/CFS research
  7. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Thanks!
    Post by: Julia O, Jul 19, 2024 in forum: ME/CFS research
  8. Julia O
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Definitely weird! I see what you mean that it's different, but actually there are some striking parallels. The patient's "unusual reaction" was...
    Post by: Julia O, Jul 19, 2024 in forum: Drug and supplement treatments
  9. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Hi Nellie, certainly if someone would like to participate but is unable to manage a call then we could see how to work it in writing. It would be...
    Post by: Julia O, Jul 18, 2024 in forum: ME/CFS research
  10. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Thanks Kitty, that's really good of you to say. Firstly: I'm sorry you have that experience, but also: that's really interesting! Might you be...
    Post by: Julia O, Jul 18, 2024 in forum: ME/CFS research
  11. Julia O
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Hi all, I'm a new PhD student with Prof. Chris Ponting at the University of Edinburgh, looking for PPI participants. The project is to follow up...
    Post by: Julia O, Jul 18, 2024 in forum: ME/CFS research
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