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  1. CarolH

    Chronic Lyme disease, post-treatment Lyme disease syndrome (PTLDS)

    Mine was not from a tick bite, but from some unknown insect when I was on holiday in the Canaries. I'd had a nasty bite on my ankle which cleared up enough on the way home to not seek help...big mistake. Further down the line I was diagnosed with Borelliosis but which strain remains unknown...
  2. CarolH

    Chronic Lyme disease, post-treatment Lyme disease syndrome (PTLDS)

    I have contributed to a couple of threads on this site since I joined but this is by far the most relevant to me. I have been diagnosed with a Borellia infection although the strain has not been identified. Lyme disease is Borellia burgdorferi but there are about 6 strains of Borellia that can...
  3. CarolH

    Exhaustion in ME/CFS, what is it and what causes it - discussion thread

    No one has claimed to know the root cause to ME or the exact biochemical reactions... Lindberg This is the fundamental problem. I am a firm believer that ME/CFS is a symptom of another undiagnosed illness. No-one can feel that ill with nothing wrong. The tests are negative, so they are doing...
  4. CarolH

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    It's not so much that the NSAIDs are the cause of the ME, just that in my case they allowed the borellia to proliferate. (I had a nasty bite when on holiday in the Canaries which I think was the origin of the infection) This is a spirochete bacterium which is pleomorphic so can survive within an...
  5. CarolH

    NHS England - E-learning Modules on ME/CFS

    I would love to be able to access this program but despite being a pharmacist, I don't qualify as I'm self-employed and not part of the UK (I'm Isle of Man which has a shared care agreement with the UK)
  6. CarolH

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Hi Julia. I'm really interested in your conversation with Kitty. I realise that you have probably found your participants but I thought I would let you know of my potentially related issue. I have a reaction to any form of anti-inflammatory. Initially, I started the ME symptoms every time I...
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