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'pseudoscience is fine for pseudo-problems' - A fantastic line, that'll be my new go to phrase.

I Love This.

Well, perhaps this is what our doctor thinks, though he is sympathetic, he is not a believer. The more you talk and explain, the more coo coo you come across. I thought we were almost over this psychological crap hurdle? We were all excited for the attention LC has been getting, this is...

@JemPD , Thank you for thinking of us :heart:

Good day amazing people, I would like to share an observation. My daughter's classic look of sub-orbital dark shadows has been present since onset of ME. She recently underwent surgery and was put under anesthetics, about two hours. Due to the heavy sedation, she continued to sleep for...

I meant for the award to go to you :heart: sorry if it didn't come across that way. Thank you for your kind words, and you as well. @JemPD

@Mij ...Hmmm...

@Haveyoutriedyoga . Thank you for your feedback. Thank you everyone. I guess we will just have to try it.

@Midnattsol Thanks for sharing. That's insightful. @Creekside Yes, seems to be the general consensus, I guess with everything else, works for some and not others or makes things even worse. Thanks for your reply

Quakery lol...

Good day my peeps, I would like to know if anyone has tried Red Light Therapy with a proper device (quality, third party tested etc.). If yes, what was your experience? Thank you... Low-Intensity Light Therapy: Exploring the Role of Redox Mechanisms - PMC

@SNT Gatchaman , OMG .

@Trish , yes, thank you. I hope so too. it’s quite a relief, The adolescent doc was going in a weird direction ‘metabolic syndrome’, used words like ‘deconditioned’ and ‘rehabilitation’. Even though she says she has ‘special interest’ in ME, she clearly has a different agenda

:D:D:D

My dear community, Never underestimate the power of a shared word. Never underestimate the power and utility of a single sentence. Never underestimate the power of the time taken to express good will. Because someone took the time to read, emotionally process and respond to a simple thread...

Wow, what a superb article.

@Wonko Did it make you worse in any way? Thank you for your reply . @Jonathan Edwards Yes, indeed. I just do not understand, but Kitty said it correctly and I guess that's what it is, that it seems that the doctor is trialing, on my child, after maybe reading one study. Thank you for you reply.

@Kitty . Thank you for your reply. I read a study where every person in the CFS study had higher lactate in their CSF. Maybe it's not in their blood stream?

Good day everyone, I hope that you're having a decent day. I've read that metformin is a 'miracle' drug, that can be used for people without diabetes. People -non-diabetics- that have taken it say they feel better, they have a boost of energy, and that off-label metformin could be given to...

@Creekside Yes, it is comforting and warm, my daughter felt the same when I discussed what you had shared. Trying things is hard for most ME people, usually they are taking multiple drugs/supplements etc. To know if something actually works is a long and sometimes risky process. I think that...