The problem is that these aren't really markers for ME/CFS, and in mild patients (who tend to go into these trials), there may be no difference in...
Well the problem we have is [1] patients are dying from malnutrition and [2] patients are recovering from doing things like "brain retraining". So...
Yes, good point. It had a statistically significant reduction in fatigue, but not physical function, and it wasn't maintained at follow-up. I'm...
My goal is to help patients. What the PACE trial and the FITNET trial showed in long-term follow-up was that usual care eventually caught up...
Yes, it's the doctors and scientists who are to blame. It wasn't me who called the patients gullible BTW. Calling patients gullible is a terrible...
If a patient says they were too scared to exercise due to broken mitochondria, then they try it after they realise their mitochondria aren't...
Yes, I'm aware. I think it's just important to be accurate in claims. The improvements were maintained at followup, and the control groups...
The reason I bring it up is because it's a major problem. There is a very famous youtuber who has just had a dubious mito test from Germany....
Tuha, I completely agree with everything you say. You seem to be assuming I'm saying something that I'm not. I'm very familiar with ME/CFS, and I...
Why do you say they are not suitable for people with physical symptoms?
That is a frankly ridiculous claim.
Because it is demonstrably true, and you can see that if you talk to other patients. I have a list of examples, but it's against the rules to post...
Actually there are multiple studies, as has been pointed out. I think what you mean is that you don't agree they are high enough quality.
It's frankly insulting and ridiculous to equate psychology with astrology and astrology and Scientology.
It's certainly understandable, but very unhelpful in a number of ways.
But it didn't. It showed statistically significant improvements for CBT and GET.
NICE downgraded the evidence due to indirectness (not requiring PEM). It wasn't due to the quality of the evidence itself.
No, I'm not. They are two different criteria, and research uses them both. I agree with your points about ICC. All the criteria are somewhat...
Yes, that is true. There are no studies looking at precipitating and perpetuating factors using CCC or ICC. I see the s4me factsheets also...
Yes, I'm familiar with the arguments.
Separate names with a comma.
