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I can send you some from Connecticut...

Just clarify, I am not attempting to generalize and many publish studies talk about generalization when they shouldn't because their research designs do not support the task of generalization and I am not using PROMs because they are limited in many ways for many populations. The review you cite...

I have been ill since 1999 diagnosed in 2017. I will respond to other posts but I am having a bit of an episode right now.

That never happened to me. -5C happened and I complained until the summer....

Yes. Can he do my driveway?

Hello Everyone, I just want to clarify a few things and I thought the best way was an open post. When I decided to conduct this study, I did not think it would be something that everyone would agree with because I am not doing biomedical research, which I think a lot of the ME/CFS community -...

Hi. Motivation is definitely a concern, but I would answer it based on your motivation given living with ME/CFS. I am less motivated to do things I know will lead to a crash. So I don't do somethings, pace myself for others, and complete tasks that I can get done with no problem. If you would...

ScottTriGuy, That is a good question. That question is part of a standardized instrument so the questions about motivation is about whether you want to do not. Not whether the outcome would be bad a result of doing the activity. Going back to you example, I never want to shovel snow even if it...

Hello, I am Jemel Aguilar and I have been living with ME/CFS for a couple of years. As a researcher and academic, I typically study HIV but recently turned my research attention to ME/CFS. I wanted to understand how our lives are changed by this disease. Thus, I am inviting adults (ages 18+)...