Hi Duncan I don’t know about POTs as I’m not really sure I fit the criteria but, from what you say, I do think it would be worth looking into the...
Glad you’re ok @dangermouse- that all sounds a bit scary! I also get migraines and one of my concerns is that HRT will make them worse. I...
I tend to get hot rather than cold when I’m in PEM but I just mention that I’ve had chills as you describe when my ferritin levels are low, just...
Thank you all for your replies. Forgive me for not replying or quoting in my reply here- I’m just not up to it cognitively. Some things to...
So my GP was convinced I had osteo-arthritis. Then when the x-rays have come back clear she’s wondering if It might be worth trying HRT,...
I think it would be helpful to know how people with ME have fared after vaccination. My daughter told me she had heard that people with ME had got...
I’m not really posting for discussion but more for information as I don’t think people know about it. We certainly didn’t. My daughter just found...
Have you looked at Bulk Powders? I know from memory they do broccoli powder and other green powders quite cheaply. I’m not sure if they are...
Some did some didn’t; I think there is a survey of some sort going in which will report back in a week or two. I didn’t test until late on (5 or...
The test was Abbott- through a private postal company that does finger prick tests. Results came back very quickly. The day I sent mine back the...
Don’t know if this should be in a separate thread but.. I recently tested negative for covid antibodies. Im pretty sure I’ve had had the long tail...
Thanks Trish. That is a really sensible idea and I probably would do if I hadn’t been having almost weekly calls to the GP with these ongoing...
Many thanks for this- I went vegan about a year or more ago and haven’t remembered to take b12 for quite a while now so that would explain it....
A little help please if anybody has seen similar to this. I recently got a private finger prick blood test for rheumatoid factor, which included a...
From my own personal experience I think it’s to early to talk about it being post viral. What’s interesting is it’s making me re-think the whole...
Hi Justy So sorry to hear you are so up against it right now. I do hope you start to feel a bit better soon. It’s horrible isn’t it? I’ve had to...
Thank you, that’s very kind. This is starting to feel like a new normal but I’m still not as bad as I could be I have joined a forum called Slack...
Agree so much with this. I am around 8 weeks in after what was a mild case of unconfirmed corona and there is something very much ‘live’ about...
I’ve just been telling my daughter that having ME doesn’t make me any more at risk from corona virus than anybody else. It doesn’t affect my...
I know you say you don't want to focus on personal experience but... I have been struggling with this as an over riding symptom for about a year...
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