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  1. inox
    Post

    News from Cochrane

    It’s most likely due to budget cuts at FHI. They got added funds during the initial covid-years, and had a huge role at the time. This must have...
    Post by: inox, Oct 13, 2023 in forum: News from organisations
  2. inox
    Post

    Unsupervised cluster analysis reveals distinct subtypes of ME/CFS patients based on peak oxygen consumption and SF-36 scores, 2023, Lacasa et al

    Post by: inox, Oct 7, 2023 in forum: ME/CFS research
  3. inox
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    [MEDIA]
    Post by: inox, Jul 14, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. inox
    Post

    Preprint: Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    At least in Norway. Other countries might value high income over higher education. And, yup. I’m experiencing this live at the moment. Been in...
    Post by: inox, Apr 23, 2023 in forum: ME/CFS research
  5. inox
    Post

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    Here is one of several articles from 2020, about doctors/GP not getting patients into their office. Some down to 0 a day, the doctor interviewed...
    Post by: inox, Apr 16, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. inox
    Post

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    So this is a register study, based on data from august 2020 to august 2021. Are these data valid at all? That early in the pandemic there wasn’t...
    Post by: inox, Apr 16, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. inox
    Post

    Why are Americans dying so young? 2023 Burn-Murdoch

    This one got to me. [MEDIA]
    Post by: inox, Apr 1, 2023 in forum: Other health news and research
  8. inox
    Post

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Not sure? I’ve just opted to get a ton of them. Luckily someone found cheap ones at the local grosary store for me, that I’m happy with. But...
    Post by: inox, Mar 21, 2023 in forum: Home adaptations, mobility and personal care
  9. inox
    Post

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Have you tried with a stylus / thouch penn? I couldn’t manage without.
    Post by: inox, Mar 21, 2023 in forum: Home adaptations, mobility and personal care
  10. inox
    Post

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    Have you condidered a small tablet? I have an iPad mini, and mostly use apps on it. Bonus, I seem to tolerate some tv/YouTube on the smaller...
    Post by: inox, Mar 21, 2023 in forum: Home adaptations, mobility and personal care
  11. inox
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    And I agree with others, don’t belive Bastian is the issue with delays. I would be very surprised if those that have an interesse in keeping the...
    Post by: inox, Mar 13, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  12. inox
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    But are people outside the charity involved? People on the new review team doing the work as part of their day job - in a public funded position…?...
    Post by: inox, Mar 13, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  13. inox
    Post

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    There is now a statement. Edit to add: by Karla Soares-Weiser, Editor-in-Chief of the Cochrane Library....
    Post by: inox, Mar 11, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  14. inox
    Post

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    No note or warning on the review yet, not that I can see. https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD006207.pub6/full
    Post by: inox, Mar 10, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  15. inox
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Was it this, on her blog? https://absolutelymaybe.plos.org/2019/02/08/consumer-contested-evidence-why-the-me-cfs-exercise-dispute-matters-so-much/
    Post by: inox, Feb 14, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  16. inox
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That’s not really what this hit piece was about. They framed this as patients advocates trying to get access to internal project documents and...
    Post by: inox, Feb 13, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. inox
    Post

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    So. Why. Put. It. Out. There!? I’m not even mad anymore. This is too stupid. They know the evidence isn’t holding up. And they for sure must...
    Post by: inox, Feb 2, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  18. inox
    Post

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I’ve stopped experimenting. As many others I’ve tried variouse things the first few years of illness. But nothing really helped. Worse, weird and...
    Post by: inox, Jan 27, 2023 in forum: Drug and supplement treatments
  19. inox
    Post

    COVID-19 infection does not seem to affect cognition in college students 2023 Francis and Thunell

    They are doing it wrong. «The experiments were run online through a web browser using Javascript and HTML at the CogLab website.» Students did...
    Post by: inox, Jan 23, 2023 in forum: Long Covid research
  20. inox
    Post

    Evaluating an interactive (ACT) workshop delivered to trained therapists working with cancer patients in UK 2022, Chalder et al

    Are they planning to do a get/cbt-style study on people with fatigue from cancer treatment…? Because this sounds like preparation to me. Also -...
    Post by: inox, Nov 27, 2022 in forum: Other psychosomatic news and research
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