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I know Andrew Moore quite well. He's like a Welsh Victor Meldrew. I used to work with him at the Cochrane Pain Group when I first started with Cochrane in 2008. He led a lot of pain reviews for the group. He used to get in trouble with the Cochrane stasi for not sticking to their ridiculous...

Just for added fun, here's the latest correspondence I had with Wiley who said they were going to investigate my allegation of misconduct against the Editor in Chief. Not sure whether I will receive a response to my latest clarification. I have now explained about 17 times that Cochrane did...

Just noticed authors have replied to Hilda Bastian's comment on the review - today (sorry yesterday) https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/read-comments?cookiesEnabled

I am very excited by this. I have long been interested in the possibility that HHV-6 is a key factor in ME

I think the culture and belief is that patients can only provide "lived experience" of what's meaningful and relevant to them, and can never contribute to or criticise the science itself.

The word "embraces" is somewhat of an exaggeration https://www.cochrane.org/news/cochrane-embraces-patient-and-public-involvement

I'm not sure. The sentence "Journal owners and publishers, including Cochrane and Wiley, must respect editorial independence and cannot overrule editors outside of cases of clear misconduct (which is not the case here)". Perhaps I should ask them why this is not a clear case of misconduct. I...

Hi there - not sure if this is the right thread, but it refers to my appeal to Wiley (Cochrane's publisher) to investigate my allegation of misconduct against Cochrane's Editor in Chief. I should have seen this coming, but they have decided to investigate whether Cochrane has followed the right...

Chris was my first (big) boss at Cochrane. I initially worked for the Pain and Palliative Care Group as an information specialist. We got on OK...until we didn't (when I started to challenge his authority on a few things - not ME related). And then I grew to really dislike him, and I think...

"Acting" is a good word for it

This is all just brilliant

Very much not. As most of the public have never heard of Cochrane. I spent a lot of time before I caught on to the extent of their uselessness, trying to "sell" Cochrane to the public...I was surprised at the time that Cochrane big wigs were less than overjoyed by my efforts...and seemed NOT...

I think Cochrane, under Tovey, and then even more so under Soares-Weiser, is a review author (emotional/career/marketing) support service. They seem to be mostly concerned with looking after their authors and making sure they're happy, have a great experience etc because they operate a...

I don't know if you can quote correspondence obtained via FOI, but there are lots of quotes from Tovey, including... "I am afraid that I am not able to publish this version...either one should downgrade the certainty of evidence further, or it should be acknowledged that the magnitude of the...

this is my experience so far. They refuse to see that a badly designed study is just as unethical as a study which harms and/or inconveniences study participants during their participation. Because the harm comes later when the study results are manipulated and mis-used used to justify poor...

Yes absolutely. Was planning to stick to whatever trial questions were set by James Lind Priority setting partnerships. The methodological rigour would be provided by scientists without any conflict of interest and who understand that relying on subjectively reported outcomes in unblindable...

I have applied for funding to develop a way of ensuring patients are involved in designing trials - specifically choosing the treatments to be trialled, the outcomes to measure, and the ways to measure the outcomes objectively. Will find out whether I've got the funding in May. I am proposing...

Exactly this. It's also much more difficult to do good trials in this area. Also funders don't readily invest money in trials of non-biomedical treatments. But when they do, they want the answer which will save them money. This is why PACE was unbelievably bad science, and gave the answer the...

I sit on a research ethics committee. I was astonished that at a group training day, one of the presentations about a case of a complaint made against a REC decision to approve a vaccine trial on children. The complainants invoked the Declaration of Helsinki. I distinctly remember one of the...

Why is Meerpohl being quoted in the Rucker article as saying "I find the decision to declare a ten-year-old review as sufficiently up-to-date unusual,...The basic principle of Cochrane is that if relevant new studies emerge or methods have changed, a review is updated,” when a/ he was a...