"This paper also sheds light on the possible risks of a 2-day CPET. It does not appear that patients or research subjects suffer permanent or...
The number of people in the UK with severe post-covid fatigue right now likely exceeds the generally accepted ~200K number for those with CFS. If...
https://www.bmj.com/content/372/bmj.n829/rapid-responses Response to BMJ article. The 5 day old email to the three apparent lead authors has not...
I would argue that employment data and benefits data is a pretty objective measure of actual activity. Of course, even though this was STRONGLY...
I've currently been commenting on twitter and in other places, and mailing the involved professors about the severe problems (shared with many CFS...
I note the very important and highly misleading line ' Currently, there is no scientific evidence when it comes to effective physiotherapy for ME...
I am unsure what basis I was referred, but perhaps a decade before that I underwent what on reflection was an CPET and was diagnosed by two...
Apologies for the slight off topic. Is there an archive for any guidance prior to the 2007 guidelines? Wondering if there is a timeline of what...
A point I have not seen raised in this thread (or not understood if it has been made). It is important for any mention of CBT in the document to...
Same issue, different disease. Medium-term effects of SARS-CoV-2 infection on multiple vital organs, exercise capacity, cognition, quality of...
On a technical point, have the carrier bag regulations been waived during this time? Otherwise, the delivery in bags may be costing considerably...
My #1 takeaway is 'fuck normal'. - if something helps you, it doesn't matter. However silly it looks to others, or however much you don't want it...
I am tempted to have two cards for when I go out with A) Brief explanation of CFS, and problems I have. B) Legal threats to the organisation...
https://www.jstage.jst.go.jp/article/internalmedicine/48/21/48_21_1849/_article - free PDF at...
A note for any of us who notice cardiac symptoms being called out as 'serious' and caused by covid. It may be worth calling attentions to these...
I should have perhaps elaborated on the original post. My worries are the entire tone of this piece is 'everyone will get better' - and is...
Merged thread Extremely dangerous NHS exercise guidelines post covid. https://www.yourcovidrecovery.nhs.uk/your-wellbeing/getting-moving-again/...
I have not seen (through a brief search) any mention of an effort to bring together what we've learned over the decades about how to measure, or...
'I can do anything, as long as it only takes 30 seconds and I've been resting in bed and not thinking too hard the days before'.
Merged thread Amazon Smile is a program to donate a small portion of the price of stuff you buy on Amazon to charity you nominate. This only...
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