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Laura Pace is there and she is an outstanding gastro doctor that has done many presentations for dysautonomia international.

That twitter post helped make a lot of sense. Autoimmunity of some sort has to be 'part of' the big picture. My autoimmune friends go through peaks and valleys with their illnesses, just like us CFS people.

I just had an appointment with my nephrologist because back in 2018 an ER doctor saw some slightly increased protein in my urine. Local nephrologist (that just retired) was seeing me 1-2x per year and I was classified as stage 1 CKD and she was really not worried by it at all. She retired and...

I just watched it, and it was very rushed. I had trouble following along but caught some of the gist of it. I still feel in the dark though. I don't think he has all his ducks in a row yet.

What is concerning to you?

Maybe I'm missing something but what are the 'possible treatments'? Is it ivig?

https://www.healthrising.org/blog/2022/07/06/apamycin-resurgence-doctor-chronic-fatigue-syndrome/ I felt this story was kind of far fetched like other CFS recovery stories. Now I’m maybe a little more convinced.

Split from USA: NIH National Institutes of Health news Avik Roy and Gunnar Gottschalk presented their hypothesis on a NIH ME/CFS working Group call A relevant paper is Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells , 2022, Gottschalk et al...

Feels good to see some of this hard data come out. Who thought the NIH would be the ones to help CFS patients and researchers find some leads...

To add: It seems the NIH has decided to take this same study and run it in Gulf War Syndrome patients. My gut feeling is they wouldn't be doing this if they didn't find something in the big CFS study. The research will focus on the immune and autonomic nervous systems, as well as the body’s...

I agree with some of the sentiment above. I think Nath knows the controversy surrounding CFS. He’s knows he’s very outnumbered by physicians who believe CFS is mental. His paper has to be indisputable the day it prints for the public.

https://www.cell.com/cell-reports/pdf/S2211-1247(22)01653-9.pdf Do we need anti anxiety meds 24/7?

Exosome-associated Mitochondrial DNA is Elevated in Patients with ME/CFS and Stimulates Human Cultured Microglia to Secrete IL-1β https://www.researchsquare.com/article/rs-154011/v1 Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating disease that presents...

I don’t really know. I ‘think’ there are many different diseases that need to be excluded before CFS is made the diagnosis. I have a gut feeling a portion of us have undiagnosed illnesses that mimics CFS. Dr Nath ran into this when doing his big study. Those patients were removed from the...

I know how you feel. I think there is hope to hold out for with the NIH paper, if Prusty is a let down. I'm convinced Nath and his team have found some important abnormalities that there might be potential therapies for. I think I've watched all of his videos on YouTube talking with other...

The low incidence of POTS is surprising to me. I know Klimas, Rowe, Systrom, and probably others would say the prevalence is much much higher.

I get this and I personally think it is related to the high levels of norepinephrine I have from POTS. Typically when I feel my heart rate is higher than normal I also feel hot, shakey, on edge, can’t sleep, and sweaty. Only reason I know is from getting my levels checked at Mayo Clinic. I...

I was wondering where Jonas disappeared to over the last 1-2 years, or so? There's a strong convergence of neurological-inflammation that seems really really strong now, especially after watching Nath interviews. Really hoping for no permanent damage. Is there anything that can lower this...

I have something strange to add. As stated before my worst symptoms are gastro issues that keep me house/bed bound and therapies/medications just doesn't work... I have also read some arguments about why patients vary so much in symptoms, even though emptying times don't seem to line up with...

I sure hope Prusty and Nath can make some jaw dropping presentations soon because I am feeling raked over the coals. I hate seeing $ for research being squandered.