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  1. mango

    News from Scandinavia

    Feeling the fear of many: orienting affects in Swedish austerity politics https://www.frontiersin.org/journals/sociology/articles/10.3389/fsoc.2025.1411526/full "This article investigates the emotional consequences of austerity politics targeting services and support for disabled citizens in...
  2. mango

    ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products, 2020

    Summary available in Swedish on ALS-fonden's website: Så kan du känna igen tveksamma behandlingsmetoder https://alsfonden.se/aktuellt/varning-alternativa-behandlingsmetoder Many thanks to @MittEremltage for highlighting this valuable paper on her blog :thumbsup: ALS-fonden varnar för...
  3. mango

    ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products, 2020

    The ten red flags described in the paper: Large out of pocket cost Advertised as effective for multiple incurable conditions with different causes Lack of safety and scientific oversight Absent or limited informed consent process Lack of an evidenced mechanism by which the intervention might...
  4. mango

    ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products, 2020

    ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products "Patients and families affected by disabling, life-shortening diseases such as amyotrophic lateral sclerosis (ALS) often turn to the Internet for answers (Citation1). There they can find a large number of...
  5. mango

    News from Scandinavia

    Petition for better healthcare for people with POTS and other kinds of dysautonomia in Sweden. Please share widely! Dysautonomi Sverige, the network behind this petition, is doing great work, having meetings with politicians and other people in power among other things, so this is not "just a...
  6. mango

    Cerebrospinal fluid immune phenotyping reveals distinct immunotypes of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Bastos et al

    The problematic aspects of the diagnostics at Bragée ME Center have been discussed on this forum before, and also the various subgroups that Bragée ME Center made up very early on and added onto the ICD code in the patients' medical records. Just quickly mentioning it here, because a lot of...
  7. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "An article on using prednisone for Gulf War Illness was recently retracted. The article may be found at the below links. - Jarred Younger"
  8. mango

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    18 minutes long, in Swedish. Uploaded today by RME (the Swedish ME Association). '"Why the psychological unit?" Interview with Björn Bragée.' "Varför psykologiska enheten?" Intervju med Björn Bragee.
  9. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Auto-translate, unedited: "Health administration responds to criticism from the National Association of ME Patients Here is the health care administration's response to the criticism from the National Association for ME Patients. The answers are coordinated with Åsa Sandgren Åkerman, head of...
  10. mango

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Hälso- och sjukvårdsförvaltningen svarar på kritiken från Riksförbundet för ME-patienter https://www.tv4.se/artikel/6pFZJKL3AQ8JA3EypRFLQ9/haelso-och-sjukvardsfoervaltningen-svarar-pa-kritiken-fran-riksfoerbundet
  11. mango

    ME researcher Jonas Bergquist - interviews, talks

    Nyhetsmorgon 12 May https://www.tv4play.se/korthet/bb880cb6e4a40240ff0c/vanlig-influensa-kan-bli-me?panelId=3CPrjIL8JQFiNDn83LOlYQ
  12. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "055 - Focused ultrasound reduces chronic pain You can get the open-access paper at: https://pubmed.ncbi.nlm.nih.gov/39073370/ Jarred Younger"
  13. mango

    News from Scandinavia

    Podcast episode by SFAM about functional disorders, in Swedish. Carl Sjöström om funktionella tillstånd https://share.transistor.fm/s/a6793d47 ("SFAM, the Swedish Association of General Practice, is the professional and scientific college of general practitioners (family physicians) in...
  14. mango

    Coping with heat

    Dyson Cool tower fan.
  15. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "A scan that measures your brain fuel A technique called 31P magnetic resonance spectroscopy allows us to measure how much critical adenosine triphosphate (ATP) you have in your brain. This scan may show us why people with ME/CFS have limited resources for sustained physical or mental...
  16. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    052 - Why most people are excluded from clinical trials
  17. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Long article in a big newspaper (includes a tiny bit about the research). Expert: Total livsförändring behövs för att bryta utmattning https://www.sydsvenskan.se/2025-04-02/expert-total-livsforandring-behovs-for-att-bryta-utmattning/
  18. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Another opinion piece in a very large newspaper. ”Avskaffad diagnos röjer ett haveri” https://www.svd.se/a/kwzzPk/haveriutredning-behovs-nar-diagnosen-utmattningssyndrom-nu-avskaffas-skriver-isac-riddarsparre
  19. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "Sorry for being gone for so long! Here are some new analyses from my lab that show elevated lactate in the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) brain. I believe these results show that ME/CFS involves brain inflammation. You can find the article mentioned in the video...
  20. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Yes, a psychiatric diagnosis (that includes physical symptoms). I've never gotten the impression that they have tried to frame ED as a "functional" disorder. ED used to be called "utmattningsdepression" (literally "exhaustion depression") until 2003. Thank you so much @Jonathan Edwards, for...
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