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Yes the 10 week thing worried me too. But that's for people who can get to them. For home visits, they come (for me anyway) monthly (as appropriate) for as long as what we are doing is helping. At the moment my sleep hygiene is aiming to be off computer by 11 and asleep by 12. oops it's nearly...

also today the OMF have released paper about potential blood test. tiny first step but hopefully eventually a blood test for the illness which kicks the psychobabble into the long grass in due course. though to be fair everyone at kings said I was genuinely physically unwell. they had no magic...

Maybe I don't mean 'blind'. I'm not confident I know what I mean. But yes my understanding was to limit outside influences that might change how I saw the treatment and/or my progress. At least that's how I think of it now, I'd have to look at my notes from the time for if that was true back...

i think it's a brave thing to do, to crowdfund for your wages! and the success I think is testament to teh splendid job David does for us globally. I do appreciate his intellectual rigour and honesty and self awareness, which throw into sharp relief the lack of these qualities in the...

I didn't get the feeling it was to stop me from accessing sanity checks. I think it was a (misplaced) effort to make it, erm can't remember the words for what I mean. David Tuller talks about it, how it's not blind because people know what's happening? a recognition that this was a thing and the...

oh ok thanks. like I said, I can be quite flakey and also at the time, I had no idea I'd need to remember it all nearly a decade or so later! They ahve had changes of address from me at Kings but I don't remember filling in any other carbon copy checklist type things. Mind you from 2013 I...

oh the other thing I forgot is David Tuller spoke to quite a few of the participants in that first trip to the UK in 2014. And I think more since, but like the other lady above, many are still in a position where they need to keep their jobs or have other reasons for not going public. Me going...

i'm also no sure when the 10 year anniversary is, start of trial? end of trial? start or end of my participation on it. I vaguely remember filling one in again maybe in 2010? but it's so long ago, and at the time, I didn't know it would matter now! I assumed they knew what they were doing and...

I remember getting a followup questionnaire I think maybe around 2010? But when I've asked Kings for the data, they would only send a diary note of my therapist appointments from the Unit saying the actual data is offsite, so I sent a request to Kings actual data unit and got crickets back...

Hello. I'm Lois/ Goblinff/ Goblinf, varients thereof. A PACE Trial participant on CBT arm at Kings under Trudi Chalder with a therapist called Brendon (can't remember his surname). I found this thread by accident because what I've said is in it. So it seemed like a good idea to register and...