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  1. Neli

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    I was watcing this and it clear a lot for me ( some thing confuse me though...)
  2. Neli

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Like code for illness. They have a book of codes and they must put it in diagnoses.
  3. Neli

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    About xyz Imunologist have me under Lupus in remission at the moment ( that moment last for 20 years now) just to put me under exams and regular checking once a while . There is no ME in her book.
  4. Neli

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    First thank you for my English evaluation. I am at ease now, I will write more freely. Second, I guess what you ask yourself, scientist are asking right now, so: good question. What I figured out: what they found is an link to autoimmunity. Now they are proving it. If it is deficiency it can be...
  5. Neli

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    I find that explanation somewhere else ( I can't find it now) but in general it says: NK cells to be activated need Ca signaling. Other words: if Ca does not enter the NK cells it cannot be activated. What activated means? Simply such cell know who is the enemy. Non activated cells can go around...
  6. Neli

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I want to add something to my previous post. The way I get medical care I can say lead me to recovery ( witch was purely by itself). They tested me for so many things, among them HIV, cancer, even pre-cancer stage in organism, MS, lupus, autoimune thyroide diseasis, EBV infection, I really can't...
  7. Neli

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I am a vet so I developed and "medical way of thinking" . When I try to make an diagnoses that process looks in a way like an crime investigation. You have many suspects and than you eliminate one by one with expirience or some metods. In medicine we have expirience and tests. Than you say: "...
  8. Neli

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I'm so glad you pointed this out Michiel Tack. Beeing with CFS/ME for 30 years now ( 70% recovered at the moment). So glad for Jen, but her blog made such an distress in my CFS/ME group. People bound for bed 20, 30, 40 years or more see hope in her story and ask around how much it costs, etc...
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