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  1. saltcaramel
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    Yes, I’m aware of your stance on this. I still don’t understand how a group a people with clearly pathological hypermobility to the point of...
    Post by: saltcaramel, Sep 13, 2020 in forum: Fibromyalgia and Connective Tissue Disorders
  2. saltcaramel
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    Indeed, it’s also puzzled me that out of my real-life friends (not through any health groups - so that’s a fairly random sampling of several...
    Post by: saltcaramel, Sep 12, 2020 in forum: Fibromyalgia and Connective Tissue Disorders
  3. saltcaramel
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    @Jonathan Edwards Can I ask a bit more about why you call hEDS a make-believe diagnosis? I have quite a few friends and acquaintances with this...
    Post by: saltcaramel, Sep 12, 2020 in forum: Fibromyalgia and Connective Tissue Disorders
  4. saltcaramel
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Personally, I would also LOVE to see this kind of study!! I’m not sure why it hasn’t been done, many patients are longing for this! We can only...
    Post by: saltcaramel, Sep 1, 2020 in forum: ME/CFS research
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