Well most of those would look for Mast Cell type reaction with many who can define in individual patients what is needed. Binita Kane has done...
Yes they have, to my knowledge there is one place in the UK who follow the correct procedure. Does this help though? I think before we have...
It is confusing and I do not think we have the right idea due to lack of searching finding and research. I have kept Angus or his been kept away...
How do you know skin is not inflamed in PEM in general? Has anyone asked the question while either in the GPs office or in research? Do people...
You are right and patients do believe that healthcare is based on patients experence/symptoms. We should be able to look at other complex...
I think we need the data first and the SNOMED codes could help us there. We should as advocates know and understand them, ask them to be user...
It always confuses me, the whole tomato, strawberry, potato, pepper, thing, they are after all part of the deadly nightshade family... so you...
As always, we start with confusion, opinion, and a determined effort to not accept the possibility and to treat. What are the long-term outcomes...
I have always disagreed with this approach because of what I have witnessed and what I have lived through. We should have been looking for the...
I feel it is more complicated than just ATP Your first sentence in a way proves my point. So if your body is fighting flu like something then you...
The issue comes when it is generally accepted that anyone can make a diagnosis, I kid you not. There is a process of challenging a diagnosis and...
You mean like this paper? Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no...
That is not the fault of the patient and it needs to be clearly understood that hiding or masking is not acceptable. Every dr should understand...
It is Dr Vickers go to. He works in Cambridge and I have come across a few families that have been told their child is autistic but the families...
I get your point I think, but I disagree with it; mostly because if you do not recognise the blood loss you end up in a spiral of decline an...
That does not mean there is none, it just means we have not perfected a test clear enough or understood what we need to understand yet! That is...
I think the words we need to concentrate on is "exertion" and "energy needed". We need to understand what energy is needed how and why and where...
Why do you say there is no inflammation in ME?
Maybe we are not looking at all factors that cause PEM? I have noticed over the years of talking to many is that eating a meal can push a person...
Separate names with a comma.
