And it keeps going into adulthood, when you get asked about your teens/young adulthood but have an experience so vastly different from many others.
It should be embarrasing, but obviously they don't see it that way. That list is laughable (and so was the rest of the presentation..)
I have access to the paper, send me a pm if you want it :)
Khrono, the newspaper that has had numerous articles about how concerns from pwME about the Lightning Process study at NTNU and conflicts of...
If that was the case they could have gathered new studies outside of the highest hospitalization rates as a sort of control. Without them saying...
I'll add that PANS/PANDAS can be misdiagnosed as autism, so you have people developing symptoms after a viral trigger. And a concern I've heard...
I'm mild, currently working full-time and have a family to care for. Taking part of a study doesn't easily fit into my energy budget. I'm not...
In post #36 in this thread I've written they have a "both sides" approach. I seem to recall my view at the time was based on their opinion piece...
Eight members of this group met with the Norwegian Directorate of Health to talk about ME in february, as found out by and FOI request by a...
If anyone wants to discuss what is reported by Sissel in the link above, we have relevant threads on the development of new guidelines, on the...
The group has been part of a meeting at the directory of health on the new guideline developments in Norway, and quote: "We have never before...
The guideline doesn't really recommend GET or CBT, it says it might be helpful for fatigue but doesn't seem to do much for working ability. But...
They have invited themselves previously and I think asked to be kept in the loop even if they at that point got turned down, so I don't think it's...
Jeg syns også det er selvforklarende. Our language story is actually pretty interesting with lots of twists and turns. There was work to...
Takk for konstruktive tilbakemeldinger @Utsikt! I andre norske tekster pleier jeg å skrive at forkortelsen "PEM" ofte også brukes på norsk, så...
Thanks for noticing! What seems to have happened is that a part got lost when the translator copied it to Word before starting his translation,...
I’ve removed the quotes :thumbup:
Here is a draft for the first factsheet in Norwegian, happy for feedback :) Introduksjon til ME/CFS Hovedpunkter ME/CFS (myalgisk...
Again like ME/CFS some say it's possible and some don't. Others see it as a "dynamic" state one can transition in and out of. And as rvallee...
In this case, it’s a catch-all phrase that can include having an infection, a cognitive challenge or having to deal with something emotional...
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