Search results

I have severe M.E, I am bedbound. I have to go to hospital for a procedure which is going to require a general anaesthetic. The procedure should only take 5 / 10 minutes. My question is, has anyone who is severe had a G . Anesthetic? How has is affected your M.E ? What should I tell the...

For those of you who are taking Ivabradine , Have you noticed any weight gain?

Thanks for the warning I have been in touch with Martin ever since he became bed-bound in February 2018 so I know how bad he was , He crashed last week because he walked a flight of stairs and walked through the house . AS we know abilify is not a cure and we still have to pace very carefully...

Today I stood up for the first time since May 2018 , only for a few seconds but I did it!! Felt very strange to be upright again after so long. Will this continue? Who knows, but for now I am happy. Jessie.

I started at the end of September

Abilify is still working for me I am taking 3 mg. I am 100-percent bed-bound so yesterday I was able to have a bath using a bath lift had my hair washed . I was also able to go downstairs using a stairlift ,and I was down there 3 hours. In the evening I was able to watch TV for more than an...

I started at the end of July this year. I started on 0.25 MG until I worked my way up to where I am now I started to notice the benefit when I reached 2MG

I am currently taking 2.5 mg abilify,my M.e is very severe I have been bed bound for the last two-and-a-half years. since taking Abilify I am able to talk more, I'm able to have a bath using a bath lift, I am able to go downstairs using a wheelchair and a stair lift, I'm able to spend more...

@Yessica Thankyou for the reply. I seem to pee alot when I go, for example, About 500ml. Is this normal? I recently had some blood tests done which included a diabetes check, nothing out of range.

I just wondered if anybody else suffered from the same problemI have, and that is I feel the urge and need to to urinate quite frequently and when I do is always quite a large volume. I drink a lot of water and herbal tea but I don't seem to be a hold on to it and any fluids I drink I have to...

I know someone who is severe and bedbound already taking Mestinon, but I am very disappointed that they are bothering to trial this drug, absolute waste of time and money. I know a severe bedbound patient taking it with very little improvement at all.

Hi, My question is has anybody tried fludrocortisone and has it made any difference? My M. E. is very severe I am bedbound does anybody know whether this would assist in enabling me to sit up in bed? I realise that you have to increase salt intake and wear compression stockings but I just...

With PEM I feel like I am close to death, Like i have been poisoned, Organs feel like they are shutting down, Chest hurts, Legs feel like lead, Glands in my neck swell, My body doesn't want to move or have to think, I never knew it was possible to feel this ill!!