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    Criticisms of DecodeME in the media - and responses to the criticisms

    On point 2 they’re confusing Chris Ponting’s comments on an earlier study he authored, looking at factors in the blood, with the DecodeME study. This just goes to show how disingenuous and self-serving their criticism is.
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    Sebastian Faulks on his glimpse of madness: ‘I was lost in a shadowland’ - The Times, August 2025

    Sebastian Faulks on his glimpse of madness: ‘I was lost in a shadowland’ A terrifying episode during the author’s student years ‘severed his link’ with reality — and fuels his mission to understand psychosis and schizophrenia
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    Criticisms of DecodeME in the media - and responses to the criticisms

    Thanks, I was able to read this on an internet archive but don't have an active subscription. The version I read had just one comment from a 'Mister mister', the first comment apparently, and it was woefully ignorant and in need of rebuffing, maintaining a psychological origin for the condition...
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    I appreciate the need for rigour but I think you’re being too sceptical here. PEM has been demonstrated as a measurable biological phenomenon in 2-day CPET in multiple studies that show day one performance could not be repeated on day two. A drop in performance at the anaerobic/ ventilatory...
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    But I think it does matter. If there are fake actors involved with ulterior motives it undermines the integrity of the whole process. Most people reading that response will feel that there’s something off about it. This could cause them to lose motivation and become less receptive and open to...
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Thank you. I agree this does look awfully like an AI-generated response again.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The green paper proposes that in order to qualify for the daily living component claimants now need to score at least 4 points on a single descriptor, in addition to reaching the total number of points required. So if you currently qualify by scoring 2 points on several descriptors that’s no...
  8. H

    Coping with heat

    Thanks, they look good. My slight concern is that I know with the types of reflective, tinted film that can be applied directly to windows, the glass needs to be toughened glass as otherwise the increased heat gain can cause the glass to crack, and apparently this is still a risk with reflective...
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    Unequal access to diagnosis of myalgic encephalomyelitis in England, 2025, Ponting and Samms

    From the BMC Public Health paper: “If all 68.3 million UK citizens [38] were to have a lifetime prevalence matching the point prevalence of NHS Cornwall and Isles of Scilly then 83,626 males (i.e., 0.25% of 33.450m) and 320,296 females (i.e., 0.92% of 34.815m) would be given a G93.3 ME/CFS...
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    Unequal access to diagnosis of myalgic encephalomyelitis in England, 2025, Ponting and Samms

    Merged thread The Guardian: Over 150,000 more people in England have ME than previously thought, study finds LINK This seems fine except for the journalist or sub-editor reclassifying ME/CFS as “chronic fatigue”… a symptom, not a diagnosis. I do wish they’d stop doing that.
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    Placebo effect discussion thread

    https://www.s4me.info/threads/bbc-trust-me-i%E2%80%99m-a-doctor-tests-a-placebo-for-back-pain-and-sees-significant-results.6003/page-3#post-109929
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    No, the £775 increase is the annual amount, not the new monthly payment. Press release Biggest shake up to welfare system in a generation to get Britain working
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The government said they would increase the Standard Allowance for Universal Credit by £775 a year by 2029/30, that will amount to an extra £64.58 per month bringing it up to £458.03 per month.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Really, is that right?? That's a bit more hopeful than my impression as I thought they were abolishing the WCA altogether and making no distinction between LCW and/ or LCWRA (whichever of those limited capability groups) and those who are able to work; and the only way to get any health...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I thought that for PIP while it was about what you can or can't do on the majority of days, that if you can't do something even for only part of the day, that still counts as being unable to do it that day. I think it might differ slightly from DLA in this regard where it needed to be for the...
  16. H

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Some of what she says is interesting, but am I right that she regards ME/CFS as a psychosomatic condition, and what is her evidence for saying that? In my view, it undermines her credibility. It shows her up as someone who has started with a hypothesis and is reaching for evidence to support it...
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    Exploring Long Covid Prevalence and Patient Uncertainty by Sociodemographic Characteristics Using GP Patient Survey Data, 2025, Woodrow, Alwan et al

    Link to paper https://onlinelibrary.wiley.com/doi/10.1111/hex.70202 ********** One in ten people in UK may suffer from long Covid A study highlights the continuing impact of the pandemic and raises concerns about undiagnosed cases LINK
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    Review The Research Progress of Mitochondrial Transplantation in the Treatment of Mitochondrial Defective Diseases, 2024, Hu et al.

    The Times Is mitochondrial therapy the next sports doping scandal? Archived article here.
  19. H

    Duvets - what fillings are worth a try, and which brands and retail are good (eg for being able to send back)

    Have you thought about trying a wool-filled duvet? It’s very breathable and supposed to be good for temperature regulation. Apparently, there is a study showing that wool bedding increases the amount of REM sleep. Some of them aren’t the best for snuggling up in though because the filling is a...
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