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I don't know if this has been mentioned but menopausal brain fog is very different to M.E. brain fog. I suspect the difference is a hormonal change versus inflammation/lack of blood circulation/lymph drainage in the brain. I can't think how to put it in words on how though but they are both...

I've had exactly the same pattern. Initially it flared up. For over a year it just stayed up, but only on my right side. It has been mildly concerning because it is hard and felt about the shape of an egg. My husband was very concerned when he felt it. It was impacting my jawline. Whilst it did...

Rather than using anti-histamines, I'm looking into DAO deficiency causing high histamine levels and associated problems from. Add in exercising which causes histamine release, could that be a cause of PEM? I might get tested for DAO deficiency especially since I was low in iodine and it helped...

European ban on silver fillings ‘could be straw that breaks NHS dentistry back’ (yahoo.com)

Some great work being done by the Charity Light Aware: Recognising light-disability - LightAware | LightAware

Right, I didn't know one of the authors is an anti-vax quack. What is wrong with the study exactly?

Don't put Mercury in your mouth, Johnathon. For ME patients to be exempted from amalgam fillings, we need some back up from the charities that are supposed to represent our health and well being. Would rather have the choice of white fillings than to be offered CBT.

I thank you all for your considered replies. Always a lot to think about and all angles being discussed here. I think the ME Association Dentist advisor should be pushing for ME patients to be made exempt from amalgam fillings so they have access to them via an NHS dentist. I am appalled by...

It says in this article that the WHO states there is no safe level of Mercury for the body. Wouldn't that be enough to cite to a GP when already ill especially? Also, I've seen a reference to a study, but can't find it that said there was 2-12 times the amount of Mercury in the skin of dead...

Thanks for that. That Dentist doesn't use Mercury but says there might not be enough of an evidence base to justify that decision. If Mercury was safe, it could be used on pregnant women and children, surely?

Thanks to everyone. I have ME and considered removal of my mercury fillings but decided against due to risk of relapse. As a layperson I can't consider it in any way common sense to put Mercury deliberately into the mouth due to it being toxic. A few countries have now banned mercury...

Merged thread Long Covid and White Dental Fillings on the NHS Hi, I wonder if anyone can help me. My husband is still managing his Long Covid. He needs 3 dental fillings after finally getting into an NHS dentist. I thought the amalgam fillings had already been banned but apparently the...

My husband has LC and has been helped significantly with Piriton (chlorphenamine). We both had allergies in childhood. I can't bring myself to trial the piriton for ME as it feels like I may have a bad reaction and can't risk a relapse at present. Might I ask which anti-histamines you trialled?

Yes, that is what I thought, I just wanted to check. I might contact them also to see if they have any other suggestions which I have only just thought to do.

Just started husband on the phyto-v yesterday after reading a promising article where a LC sufferer felt better after 3 days of taking it. The leaflet says to get this product too. Problem is husband can't swallow pills but needs to empty the capsule. Might anyone know if this would be...

I acknowledge this may not be the correct thread to post this on, but it's the closest one I could find. Just in case it helps anyone, my husband has had significant improvement from his LC using Piriton. The Long Covid clinic had advised to try an anti-histamine.

There is a change coming to the official vaccination schedule in the UK. Maybe worth listening about that here: British regulators limit covid vaccines - YouTube

Does anyone think it worth doing an outline of some of the latest videos of Dr J Campbell? I've watched them and they look sound to me.

Much appreciated, thanks. Mast cell stabilizer medications include Vitamin D. One of the few things that I found helpful was vit d. 6,000 iu as per Dr J Campbell's advice. I didn't keep that up properly. Does the forum mention exercise intolerance in the form of a histamine allergy anywhere?

I did find this list: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8308327/figure/nutrients-13-02228-f004/ In this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8308327/ From this BBC article: https://www.bbcgoodfood.com/howto/guide/a-guide-to-high-histamine-foods But it says coffee is...