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  1. Snowdrop
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    Link to reviews:...
    Post by: Snowdrop, May 26, 2022 in forum: News from organisations
  2. Snowdrop
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    @ems223 I see that you have been signed up here at S4ME since May 2021. So you may well have some idea of the ongoing issues we have with the...
    Post by: Snowdrop, May 26, 2022 in forum: Psychosomatic theories and treatments discussions
  3. Snowdrop
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The UK really needs for people like Javid to be on side in getting rid of the nonsensical BPS beliefs. However, I fully expect that for their...
    Post by: Snowdrop, May 26, 2022 in forum: News from organisations
  4. Snowdrop
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    When it comes to ideas marketing is agnostic toward the truth. It doesn't enter into it. And it's easy to include the underdog view of ME into...
    Post by: Snowdrop, May 23, 2022 in forum: News from organisations
  5. Snowdrop
    Post

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    @Mark Vink Thanks, I missed that.
    Post by: Snowdrop, May 20, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  6. Snowdrop
    Post

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Since it has passed two weeks after publication perhaps you can address all the points still but publish elsewhere. Perhaps Virology blog would...
    Post by: Snowdrop, May 20, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  7. Snowdrop
    Post

    Prevalence and correlates of alexithymia in older persons with medically (un)explained physical symptoms, 2022, Bos et al

    As to statement number 3 in Trish's post: "I have physical sensations even my doctors don't understand." Yes, right up until Covid. Now that...
    Post by: Snowdrop, May 19, 2022 in forum: Other psychosomatic news and research
  8. Snowdrop
    Post

    A Novel Digital Self-management Intervention for Symptoms of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease, 2022, Moss-Morris et al

    One could call their logic assinine.
    Post by: Snowdrop, May 19, 2022 in forum: Other psychosomatic news and research
  9. Snowdrop
    Post

    BPS attempts at psychologizing Long Covid

    Maybe he isn't. Maybe he'd like to be transparent about it.
    Post by: Snowdrop, May 5, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Snowdrop
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I think they are saying that they needed to suspend judgment until they could see real results that were robust ie consistent and reproducible. I...
    Post by: Snowdrop, May 5, 2022 in forum: ME/CFS research news
  11. Snowdrop
    Post

    BPS attempts at psychologizing Long Covid

    This might be pointless to say but I expect that to some extent GM's point of view comes directly from where he can make money from holding that...
    Post by: Snowdrop, May 5, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Snowdrop
    Post

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    I find irony in the fact that while the BPS lot generally are all writing endless papers on exercise as a cure-all there is another faction of...
    Post by: Snowdrop, Apr 24, 2022 in forum: Long Covid research
  13. Snowdrop
    Post

    News from Scandinavia

    Looking forward to hearing the stories of Agnetha & Anni-Frid . . . ;) Sorry, not really a serious post discussing the stories.
    Post by: Snowdrop, Apr 16, 2022 in forum: Regional news
  14. Snowdrop
    Post

    Symptoms of Idiopathic Environmental Intolerance associated with chemicals (IEI-C) are positively associated with perceptual anomalies, 2022, Speck

    Just because someone latches on to a theory of what makes them sick because of an absence of scientific inquiry into their symptoms it does not...
    Post by: Snowdrop, Apr 15, 2022 in forum: Other psychosomatic news and research
  15. Snowdrop
    Post

    Stuart Ritchie, science journalist, articles on science fraud and open science

    LOL. I think we'd need a whole separate thread for all the amusing guesswork on that one. This article was written by Stuart Ritchie. I sort of...
    Post by: Snowdrop, Apr 12, 2022 in forum: Research methodology news and research
  16. Snowdrop
    Post

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    I also think because we must not do too much or face consequences (some times irreversible) that the lack of variety, novelty, and just generally...
    Post by: Snowdrop, Apr 11, 2022 in forum: Post-Exertional malaise and fatigue
  17. Snowdrop
    Post

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    Exertion intolerance to me = failure to perform at a consistent level over a short (read shorter than a normal person) time-frame with the...
    Post by: Snowdrop, Apr 11, 2022 in forum: Post-Exertional malaise and fatigue
  18. Snowdrop
    Post

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    What would make the point of rebuttal to PW even better would be a few links to the relevant evidence backing the statements made. Extra work I...
    Post by: Snowdrop, Apr 8, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Snowdrop
    Post

    Long COVID (post-COVID-19 condition) in children: a modified Delphi process, 2022, Stephenson et al

    Perhaps someone might comment who understands better than I do. Here is the WHO page on LC:...
    Post by: Snowdrop, Apr 3, 2022 in forum: Long Covid research
  20. Snowdrop
    Post

    Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19, 2022, Evans, Chalder

    It's the NIHR giving her money that is a real problem. They need to be helped to understand that what they are doing is not responsible. And...
    Post by: Snowdrop, Apr 1, 2022 in forum: Long Covid research
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