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You mentioned that you have worked closely with these physicians—does that include Dr. Rowe? What’s your experience with him been, and what’s your criticism of him specifically? (I’m not as familiar with the UK docs and I’ll leave Afrin aside for now.)

I think of these diagnoses as frameworks for classifying and understanding symptoms and *sometimes* etiology—less “real/not real,” more, will this be useful in conveying my illness to doctors, guiding treatment or further research to better understand physiology at work. MCAS and ME together...

Out of curiosity, who is the group of physicians you’re referring to?