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Can I ask who you consider to be the one or two very good ME experts in the USA, and why them?

To add to what JenB said: The person who did the "pre-test" was told to "come back again after your surgery when you are fully healthy." The study team told them this when they went in for the pre-test, ahead of their fusion. Given the amount of bias openly expressed by the people conducting...

I find Jeff's response commentary on his website, to be very inappropriate. The heading still reads as "Mattie" under my search engine result, but has been renamed "Outcomes" on the webpage. Jeff again suggests that Mattie's ill health is because Mattie did not have further neurosurgeries...

I find VanElzakker's statement that he is "watching the FB group" very surprising. To the best of my knowledge, members of these groups are not informed that he is watching. I wish he would elaborate on this. @JenB could you comment please?

I'm trying very hard to stay within forum rules. That makes this awkward to word. I can't know for sure, you are right. I am basing this on the affected persons' description of their severity at the time of their upright mris. The affected people were not severe enough that I would expect the...

It seems to be a problem with the way the upright mri is done, rather than an issue with the exertion.

Some people are becoming permanently worse after having upright mris. Another has become much more severe due to fusion surgery. I hope this is acceptable to share. I think it is important to counter the "everybody who has tried this is getting better" narrative that Jen Brea is pushing on...