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Has anyone else here tried it? Would be interesting in hearing people’s experiences

Thanks everyone, finished the antibiotics and feeling a lot better for it.

I'm currently taking nitrofurantoin for an infection. Initially I was so happy to be diagnosed with the infection because I had no idea I had one (only got diagnosed because I passed out at a bus stop, knocked my head and had to go to A&E for concussion...) I thought that getting the infection...

One of life’s little sick jokes!!

It's terrifying living on a tightrope int it? I think I'm gonna try low carb (50g/day) for a bit cos it's easier & I don't have much desire to eat loads of carbs now anyway. & then if that's alright try keto again. But it's confusing - I don't know if that's a waste of time because my body...

I feel like should've stuck it out now, but I was so scared of triggering a more severe ME relapse... Since stopping strict keto I haven't eaten more than 50g carbs (so that's for the last 2 days.) But will I have to start from scratch in terms of my body adapting?

Something in did in my 10 day stint (lol) was chia seeds, almond milk, pure cocoa powder, peanut butter + a few drops of stevia for sweetness. Leave it over night and because of the chia seeds, it thickens into a dessert. I used 2 tablespoons of chia seeds, 1 table spoon peanut butter, about...

I understand. It’s not really autonomic issues though it’s the effect on my core ME symptoms. Maybe it’s making me feel worse to the same extent it makes some feel better? So I’ve stopped now. Who knows, maybe if I’d carried on it would all have reversed but I didn’t want to take that risk...

Yeh that sounds fair enough. For me it’s not really the Keto side effects but the fact that my ME itself seems a lot worse - I feel a lot weaker and my functioning has gone down. Reading around different forums it seems there are some people, healthy or not, who just don’t do well on it...

It’s strange though because I fit the symptoms of being adjusted but my ME is worse. I think it just doesn’t work for my body for some reason. Ah well!

I'm on day 10 of doing this strictly. Fairly quickly I noticed shifts (losing water weight, keto headache) and definitely my blood sugar levels have evened out & I don't have cravings for food like I used to. However, overall I feel much worse :( I think I should at least give it a go for a...

I know! I’m kinda resigned to the fact that I might not find the reason why, hopefully it will resolve at some point whatever the cause. I had it tested in the past but not since this. Got a gp appointment booked so will see what they recommend.

:( can I ask at what stage this started?

Yep turns out humans moult too! Whatever’s going on for me is definitely a lot more than that though.

Hrm... it’s so difficult because there seem to be so many possible reasons for it! Hope you get some answers.

I’m not with you sorry! Edit: oh as in body is wary of slipping! [Brain fog] I used to live in such a place, but in the big city now.

(Irrelevant to this but have just been looking at my steps over last few years & I realised there’s a big decrease in winter.. time to find some winter sun maybe.)

Will look into this, thanks. Have had it come up on blood tests before (but only borderline or was fine at next test I think.)

Right. Man don’t wanna lose my hair as well, that would feel just spiteful of ME arghh

Did it grow back? It feels a bit weird that this would happen 4+ years in but I guess my symptoms shift all the time...