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I have been taking around 1200 gm in 2 doses for around 10 years now. Actually I thought I had been taking half of this dose but just realised that since switching brands I increased my dose accidentally (says you can take up to 2 capsules on the one I have at 600mg each). At the age of nearly...

Just scrolling back on this thread I noticed a few posts from me in August about my son's PIP case that I was supporting from afar - well actually took the whole thing on in the end. Just a recap - he was on PIP enhanced daily living for 5 years and after assessment the assessor gave him nil...

MECFS for around 20 years depending on where I started as it was slow and gradual. 2001 started I guess, as I was going through the menopause - continual problems with 'viruses' and feeling unwell for a week at a time. Mild. 2005 Lichen Planus began - a 2nd autoimmune disorder after...

I had my booster exactly a week ago. 1. Had Astra Zeneca 1st and 2nd dose earlier in the year. Felt very fatigued for 2 weeks after just one day's expected side effects for first dose. Second dose no reaction at all. 2. Had flu vac for first time - no symptoms. Decided to have it on its own in...

Thanks @Sly Saint I will send it to my son. I act as his representative as he is mentally too fragile most of the time to do the paperwork himself. He had an assessment earlier this year by IAS for PIP having been on Enhanced Daily Living and the assessor gave him NIL points. I have been...

Yes, this is so. I wasn't a member myself until yesterday so didn't know of the group. I now understand that requests for accounts of GET damage can be from anywhere in the world since GET has been exported to so many countries. Also that the stories being put together in a folder to be...

I don't know anything about Tanya Marlow but I assume that she is trying to repost the original request to be helpful in an abbreviated form. I am sorry that people have instantly speculated on the Dr's name and I do not believe that the guess is correct. Yes, it was on PR but it was posted on...

This has been posted online, on a Facebook ME support group (but not here as far as I know so far - apologies if this is a duplicate. I hope I have posted this is the best place. Following the NICE guidelines debacle, someone who I know (an ME sufferer) has had a request from a UK Dr (name...

This thread has posts merged from several threads Not sure what to make of this. It's hard to believe this is real.

I was puzzled about this with regards to women going through the menopause who often put on weight. I was one of them and I put an enormous amount of weight on within 6 months to the extent that people who knew me thought I was pregnant. This was 20 years ago but I recall it well as it was quite...

Thank you for sharing that @Simbindi That must have been awful for you. Previously we have had my son's Dr write to say that he must be seen at home, but they have then done a paper assessment. This time of course it was via telephone so we could not get that changed so easily. He is...

Well unfortunately @JemPD that rather confirms the views I read on this free support FB Benefits Group on this organisation. Also if it is a case of having to do it yourself ultimately then I might as well do it myself, with or without their help. I do use Benefits and Work booklets which are...

It is very disappointing indeed if the Decision Maker does not look properly at inconsistencies in what the assessor has written, for either the decision or the Reconsideration. If they don't look at the extra evidence that we have sent though (it's very substantial as it's a social worker's...

@Simbindi I was interested to hear that you had been able to involve your MP at a very early stage, rather than waiting until the Reconsideration stage or later, and am very pleased to hear for you that it was taken note of at the Face to Face, and that you had such a good result. Not sure...

Thank you, yes, @Simbindi When I wrote to the MPs I made this specific point that it was against 'natural justice' not to consider all the evidence and I think that the new social worker's report should clinch it really if nothing else. What I suspect they may do is give my son the lower rate...

Yes, that is useful. I know some of it though, via the Facebook group and other places, so I did quote a couple of things in my MR. It is putting it into non legal language that is tricky. Actually I have done 2 Reconsiderations already - one for myself previously and the last one for PIP for...

@Simbindi I am guessing that the Facebook group I am in feel that what they do is similar, as they provide a buddy service (which I used) to look over your paperwork. They do all that for free and it's very good advice. I asked the DWP for the assessor's report weeks before my son had his...

@boolybooly Well what I have done is point them to the previous psychiatrist's report which was only 3 months before the new one did his report. The previous psych's report was insightful and supportive of my son - he knew him and had met him face to face. The new psychiatrist put in his...

Thank you @Simbindi I will bear them in mind (I know of them) though I have done the MR for this time, but if it comes to the Tribunal, I don't feel able to take that on, on my son's behalf. I have the money to help pay for him luckily. However I am still hopeful on this as I have roped in his...

Thank you @Trish I have been my son's advocate for over 15 years re his benefits' applications and now the Govt has slashed so much support in this area, it's been essential. When he is under stress he cannot put pen to paper and risks destitution at such times. I don't know what will happen...