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  1. K

    Covid-19 vaccination experiences

    I ended up not having any booster. I am very strict about my mask usage, and wear a BreatheTeq KN95 in the rare instances I leave my home. Unfortunately, I did not see any lasting improvements that would return me to my previous level of functioning. If anything, I have seen some additional...
  2. K

    Covid-19 vaccination experiences

    I was doing well for some years. Sick, but I would classify it as mild. I did alright if I paced myself. I was able to leave my home. 1st Moderna dose - General flu like symptoms for 2 weeks. At the time I was worried it would not pass, but I had pretty robust improvement. 2nd Moderna dose...
  3. K

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    My POTS is under control with Bystolic for years now. It does cause fatigue, but not as much as I experienced with propranolol or bisoprolol. For me it was worth it but I know many PWME can't tolerate beta-blockers. I elevated the head of my bed for years with some success, but I had to stop...
  4. K

    Bizarre sleep pattern

    I've had a delayed sleep schedule since I was in my teens. Never had a diagnosis but I'm pretty confident it was DSPS. I used a combo of a powerful stimulant in the morning (caffeine + Adderall) and powerful sedative at night (mirtazapine, quetiapine, benzo, countless others, but mirtazapine is...
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