For those who are benefiting from this drug and seems to lose effect after a while. How long break is needed? I felt good for 2-3 months when I...
has anyone tried to order it? I tried from Norway with VPN, but my cards declined. Tried with a Norwegian, German and UK one. Is it any point in...
Has anyone preordered this? I tried, but no luck. I would assume one needs a US debit/credit card. https://www.stat-health.com/
Do we have any news with respect to oxalates? Has anyone tried supplementing it?
Who says anything about hiding symptoms? Viagra has a major effect on me. I experience less pain and fatigue. Not sure if I would be much better...
Holy cow, that is interesting. Looked at the price of Bortezomib, and it ain't cheap. What is your thoughts on the proposed treatment/patent, and...
@Marky, interesting. Perhaps Obinituzumab will be used...? I asked Fluge about this 6 years ago. He said they were looking into it and other...
Do we know what tests he is referring to?
Has anyone that suffers from OI and ME tried this out?
I hope someone can translate. I understand Swedish, but I can't do it at the moment. With respect to my post about cyclo and hla-c*07:04; it...
A presentation by dr. Saugstad (Oslo University Hospital). No written documentation or specifics..
Seems like hla-c*07:04 is a predictor of response to cyclo. It is very premature, but how does one test to figure out if ones got this or not?
i bought myself a device to test lactate. Over the years I’ve deteriorated with more fatigue, leg pain, cramps and the feeling of lactic acid....
If you look at blood lactate levels in patients they are not normal, but the critics say that they are high due to deconditioning.
A fellow PWME sent a FOI request for it. The Norwegian Public Institute of Health had no lawful way of not making it public even if they wanted....
I'm not sure what "sources and methods" mean, but it is from a reliable source. Why Cochrane isn't open with this kind of stuff is a question, but...
I hope someone will attend and record it.
Has anyone tried ordering B5? "Use of vitamin B supplements was associated with higher levels of pantothenic acid and lower fatigue scores (data...
To my knowledge they are discussing a blinded cyclo trial, but I don't understand how they can manage to do it while keeping the study blinded....
If you'd like to write a reply to Gundersen in Morgenbladet ( https://en.wikipedia.org/wiki/Morgenbladet ), please do contact me. We've done...
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